We are so excited about a new therapy that Ryan started. It uses electrical stimulation to engage abdominal muscles, adding much-needed strength to his core. Even after just a week-and-a-half, the results are starting to show. It’s not so much in his stomach’s appearance yet, but he is clearly sitting taller in his chair. This […]
Do you realize that this was the fourth Thanksgiving Ryan missed? I never gets any easier. In fact, it is more difficult as each holiday passes. Yep, in exactly one month he’ll miss his fourth Christmas. One week later and New Year’s day will be no different. Would he even believe me if I told […]
Ryan’s core group of college friends made him a ten minute birthday video. I played it for him yesterday, several times. He meet these wonderful individuals during his freshman year in the dorm and they stayed close, as a group, after moving out. Like Kari, Ryan gives everyone a chance, but only surrounds himself with […]
I tried everything to not deep suction. Sometimes, there’s just no getting around it. It had immediate payoff, as his oxygen saturation is above 98% again.
I decided to shoot a quick video (5 minutes) on one of the recipes I use for Ryan’s blenderized food. I mix up the ingredients with each batch, but essentially arrive at the same nutritional values.