We are so excited about a new therapy that Ryan started. It uses electrical stimulation to engage abdominal muscles, adding much-needed strength to his core. Even after just a week-and-a-half, the results are starting to show. It’s not so much in his stomach’s appearance yet, but he is clearly sitting taller in his chair. This […]
Do you realize that this was the fourth Thanksgiving Ryan missed? I never gets any easier. In fact, it is more difficult as each holiday passes. Yep, in exactly one month he’ll miss his fourth Christmas. One week later and New Year’s day will be no different. Would he even believe me if I told […]
Over the past few months I’ve noticed a lot of people dealing with family turmoil. When I say turmoil, I’m not referring to a crisis from a death or serious illness. What I’m talking about here is families not getting along for one reason or another. I find this very sad.
Just like on all our big holiday meals, Kari likes to give Ryan tiny samples of many of the dishes. These are given on a sterile Q-tip type of cotton swab. The amount he samples is just enough to get the flavor and no larger. Putting more in his mouth would put him at risk […]
I’m looking forward to today. Very much. I’ll be heading to Morgantown, West Virginia to spend some time with my daughter, Kari. Sure, it will be a whirlwind couple of days (it always is) — filled with shopping, eating, and more shopping — but she makes me so happy. I (mostly) don’t care what we’re […]