Sue dedicated this past weekend Sue to our annual Holiday Card mailing. It kicked-off Saturday night when a group of women — known as “Sue’s Crew” — came to our home and helped address the cards. Their help made our wish to thank those who helped us possible. When the night ended, some five-hundred cards […]
Vantrease Donation List Request: Denial Upheld
No, Means No… Dammit! It’s another defeat for Austin Vantrease and his Morgantown, WV attorney, Heather Noel (MacCorkle, Lavender & Sweeney, PLLC). News accounts this morning are reporting a federal judge upheld the lower court’s denial of the Vantrease request to get his hands on the list of everyone who ever donated to my son’s […]
Video: Abdominal Stimulation Therapy
We are so excited about a new therapy that Ryan started. It uses electrical stimulation to engage abdominal muscles, adding much-needed strength to his core. Even after just a week-and-a-half, the results are starting to show. It’s not so much in his stomach’s appearance yet, but he is clearly sitting taller in his chair. This […]
Maintenance Planned: Know What to Do
A New Look Coming I am planning on working on this website sometime this week. Maybe even beginning as early as today. It’s bourne of frustration. So often, when I try to make an improvement, the website’s display misbehaves. Most often this is apparent in, and above, the page menus. I’m sure most of you […]
Holiday Card Mailing List
Holiday Cards Over the past few days I’ve asked people to help make sure we don’t accidentally overlook anyone this holiday season. Last year we made an attempt at sending cards, but quickly realized we didn’t have addresses for everyone; like those who donated through volunteer work, PayPal, U.S. Mail, drop-offs, meals, or the Wish List, […]



