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You are here: Home / News / Something’s Not Right

Something’s Not Right

February 24, 2014 by Ryan's Rally LLC 87 Comments

Ryan’s had it rough over the past several days. It all began overnight last Thursday. Even as of this morning, I am unable to tell you what’s going on.

Ryan’s heart rate is elevated. His baseline is in the mid-50’s at night at mid-60’s during the day. Today is a little improved, but it has been running 30 – 40 beats per minutes above his normal pace… no matter the time-of-day.

[via popstrip.com]

[via popstrip.com]

He’s also having difficulty digesting his nutrition and water. It’s taking many hours too long to clear the contents of his stomach. Last night was a challenge to just get his medications down, let alone water and nutrition. It was one o’clock when his stomach was emptied enough to give his ten o’clock medications. I can, at any time, measure how much volume he has sitting in his belly — called “gastric residuals” — by pulling it back up through his g-tube. In actuality, this is performed at least a dozen times throughout the day so that he doesn’t get too much (and him throw-up). The good news is (on the other side) his bowels and urine are normal.

His body temperature is running between one and two degrees higher, but don’t jump to the conclusion that he has a fever. He might, but I seriously doubt it. It’s my belief that this is his central body temperature responding to some (unknown) discomfort and not a fever due to an infection. This is quite common in brain injured people; where their core temperature fluctuates. The most prominent example of this is when Ryan came out of surgery and his temperature quickly rose to 109.8 degrees (yes, that’s one-hundred nine). It was off-the charts — literally — as a result of the enormous pain he was experiencing. What it wasn’t was a fever in the way that most people think of it. It all comes from his damaged brain and the regulatory system in particular. Not illness, disease, or infection.

Did that make sense?

I’m 99% sure he is not battling an infection. However, since there is that 1% of doubt we will have his blood drawn today and sent off to the lab.

It’s so frustrating not knowing what’s going on with him. Still, I do know what it’s not because I have been assessing him for days. I visually checked every square centimeter of his body that was physically possible. With the stethoscope I listened to his lungs, heart, stomach, and major veins arteries.  I made sure there was no torsion with his testicles. I scoped his nostrils, ears, eyes, and throat. I tapped on every tooth in his mouth. I moved every bone, joint, and muscle in his body. I gently, but firmly, pushed on him from head-to-toe. With the exception of his chronic hemorrhoids I could find nothing wrong.

Then I asked his doctor to do the same. He came to our home yesterday. I wanted assurance that I didn’t overlook anything.

I didn’t.

It’s so often the case with Ryan that determining issues is accomplished deductively. It’s a meticulously painstaking process of elimination. All because of Austin Vantrease and Jonathan May (both of Newark, Delaware), they have brutally beaten Ryan’s ability to simply say what’s bothering him.

What they did to him on that night in November 2009 just never ends.

 

UPDATE: Feb. 25, 2014

There is no change in Ryan’s condition today. We are waiting on the pending blood work results; which might be today but likely tomorrow.

Some additional information that I’d like to share:

  1. I gave him a dose of medication for urinary tract relief even though there was no indication of a UTI. This had no effect on him which further validates it’s not a urinary infection.
  2. Sue swabbed his stools for the presence of blood. There wasn’t any present (i.e., it was negative for blood).
  3. Ryan’s bowel movement smells slightly different. The best way I can describe this odor is like when I eat jalapeno peppers or (they just don’t agree with me) or drink too much alcohol; then the resulting trip to the bathroom.
  4. [source: wikipedia.com]

    [source: wikipedia.com]

    Like others, I worry that he might have developed gastreoparesis, resulting from the vagus nerve not functioning properly. I worry about a thousand other things that could cause slowed digestion too. I know he had issues with this nerve shortly after the attack because I was the one who demanded it be checked;  problems with sudden and dramatic changes in his heart rate. I’m not seeing any obvious issues with it at this time (uvula is centered and his gag reflex is responding normally), but these simple observations could be misleading since it is just one nerve is a network of cranial nerves.

So, that’s where we are at this point in time. I worried sick about this.

 

 

 

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Filed Under: News Tagged With: Austin Vantrease, Jonathan May, Newark Delaware

Comments

  1. Sandy Martin says

    February 26, 2014 at 7:36 PM

    Praying for all of you!

    Reply
  2. April Bindics via Facebook says

    February 26, 2014 at 3:25 PM

    I pray he feels better soon!!

    Reply
  3. Marineli Ferreira via Facebook says

    February 26, 2014 at 11:54 AM

    Praying for Ryan, from Brazil.

    Reply
  4. Holly Ledford via Facebook says

    February 26, 2014 at 9:35 AM

    Praying for your sweet boy to heal quickly and for you to stay strong! ♡ to you all!!

    Reply
  5. Holly Ledford via Facebook says

    February 26, 2014 at 9:35 AM

    Praying for your sweet boy to heal quickly and for you to stay strong! ♡ to you all!!

    Reply
  6. Holly Ledford via Facebook says

    February 26, 2014 at 9:35 AM

    Praying for your sweet boy to heal quickly and for you to stay strong! ♡ to you all!!

    Reply
  7. Barb DiClementi via Facebook says

    February 26, 2014 at 8:25 AM

    Praying for your precious child!

    Reply
  8. Ginny Lux via Facebook says

    February 26, 2014 at 8:15 AM

    Prayers for Ryan!

    Reply
  9. Bonnie Tyrrell says

    February 26, 2014 at 6:32 AM

    I have gastroparesis and it is tough to digest both liquids and solids and to maintain my weight. I am being treated at Johns Hopkins for this, by a GI Motility Specialist. We believe this was caused by a medication I was given for osteoporosis-Prolia. A muscle in my stomach was damaged. Right now, diet change is the course of conservative treatment with a possibility of a stent placed in my stomach in the future. I hope Ryan is digesting things better today and he will continue to improve. keeping you guys in my prayers.

    Reply
    • Ryan's Rally LLC says

      February 26, 2014 at 6:41 AM

      The medication for Osteoporosis, was it Forteo?

      You say it was difficult to maintain weight, which direction? Were you retaining (and adding weight) or losing weight?

      Did they also diagnose you with Bladder Spasms (also called Overactive Bladder)?

      Reply
      • Bonnie Tyrrell says

        February 26, 2014 at 1:04 PM

        The medication was Prolia- a twice yearly injectable given by my doctor. I had been on Forteo for two years, prior to the Prolia, and after the Boniva infusion. I only received 2 Prolia injections and because I am slight in build, was only given 3/4 of a dose each time. The last injection was in March of 2011. Since that time, my local gastro doctor was sure I had chronic pancreatitis because of my symptoms and my lipase levels were elevated. In January of 2013, I was referred to Johns Hopkins for a second opinion. I saw Dr. Singh there who is the head of the Pancreatitis Depart. at Johns Hopkins. After a boat load of tests/studies. Dr. Singh determined I did not have chronic pancreatitis but what he thought was gastroparesis. He then referred me to the GI Motility Department and to Dr. Stein. More tests confirmed the gastroparesis diagnosis.

        I had trouble with weight loss- because my stomach could not process foods/liquids normally, even a small amount of food/liquid make me feel full; just can’t eat much. Plus I feel nauseous all the time. Dr. Stein put me on a diet free of gluten, dairy, soy, corn, and wheat. I am to eat every 2 hours and “graze” throughout the day. A dietitian helped me with the food choices because I also have a ton of food allergies to manage as well. I am not losing weight now but am having trouble gaining weight.

        I was not diagnosed with Overactive Bladder, thankfully.

        I hope I have answered your questions. Please let me know if you have others to ask. I’ll try my best to answer them.

        Take care,
        Bonnie Tyrrell

  10. Rita Caporicci Hoop via Facebook says

    February 26, 2014 at 5:51 AM

    How is Ryan doing this morning? Any changes overnight? We are praying for answers, a return to normal functioning, freedom from discomfort and for you, Ken! We are here for all of you <3

    Reply
  11. Lori Napoli via Facebook says

    February 26, 2014 at 3:53 AM

    I am praying.

    Reply
  12. Amy Ruby via Facebook says

    February 25, 2014 at 11:08 PM

    Thoughts are with you.

    Reply
  13. Shellie A Kokrda via Facebook says

    February 25, 2014 at 10:07 PM

    Prayers for you all!

    Reply
  14. KM Jones via Facebook says

    February 25, 2014 at 10:04 PM

    hoping for answers and fixes in am, Ken.

    Reply
  15. Stacey Serian Love via Facebook says

    February 25, 2014 at 9:01 PM

    Prayers for all of you!

    Reply
  16. debra says

    February 25, 2014 at 6:08 PM

    oh please let us know I feel like a mother hen and worried, sending prayers and huggs!!!

    Reply
  17. Anna says

    February 25, 2014 at 3:37 PM

    Just got home from work, checking on any news. Prayers your way.

    Reply
  18. Laura Kirkland via Facebook says

    February 25, 2014 at 3:11 PM

    You are the true meaning of parent! I am praying for strength for both you and Ryan.

    Reply
  19. Karyn Mandracchia Ahern via Facebook says

    February 25, 2014 at 2:54 PM

    Praying for Ryan daily and hoping you get some answers soon <3 <3 Feel better Ryan

    Reply
  20. Jaimi Dean Franus via Facebook says

    February 25, 2014 at 2:52 PM

    I’m worried, too :(. Thank you so much for keeping us updated and please, please text if you need anything I can give!

    Reply
  21. John Warren Ambrose via Facebook says

    February 25, 2014 at 2:37 PM

    Praying for all of you.

    Reply
  22. Ann Shaffer Petersen via Facebook says

    February 25, 2014 at 2:36 PM

    Praying for you and Ryan

    Reply
  23. April Budzyn Tommaselli via Facebook says

    February 25, 2014 at 1:32 PM

    Sending prayers!

    Reply
  24. Jennifer Grieb via Facebook says

    February 25, 2014 at 1:23 PM

    Comforting prayers.

    Reply
  25. Keri says

    February 25, 2014 at 1:03 PM

    Praying for your strength.

    Praying for your wisdom to help you ask the right questions, leading you to the right answers.

    Praying for the Medical team you are interacting with, that they listen and watch Ryan with a creative, an open mind and eyes.

    Praying that this helps to ease your understood anxiety and concern.

    Praying that Ryan is on his way to healing.

    AND just PRAYING for “OUR” RYAN ALWAYS.

    With love and in prayer,
    Keri, MY C. F. FRANKIE and Family

    Reply
    • Paula says

      February 25, 2014 at 1:30 PM

      Praying too, and sending many hugs and love

      Reply
  26. Cindy Fox Fairchild via Facebook says

    February 25, 2014 at 12:52 PM

    Thinking of u

    Reply
  27. Stephanie Fortney via Facebook says

    February 25, 2014 at 12:42 PM

    Prayers.

    Reply
  28. Hailey Taylor via Facebook says

    February 25, 2014 at 12:35 PM

    Really hoping Ryan recovers quickly from whatever is going on with him right now. You and your family are in my thoughts.

    Reply
  29. Krista says

    February 25, 2014 at 12:32 PM

    Try and stay positive and strong! you, i love getting updates about him, you guys are such strong people. keep your chin up, hopefuly the lab results are something minor.

    Prayers from MN

    Reply
  30. Carrieanne Cox says

    February 25, 2014 at 12:28 PM

    Until the day I see those two boys repent on their knees and beg for forgiveness, get a job and send a check every month to financially pay back for some of the financial burden they put on your life and realize the depths of despair they have caused I’ll wish nothing but an eternity in hell for them. And, I’m a Prayerful Christian who believes in Christ and has Faith! But, I also believe that there’s a place for people like that! In the meantime, you’re an amazing family. You, Ken are a tremendous man!! Keep fighting, because that’s all you can do and damn do you do it well! Ryan is proud to call you, DAD!!

    Reply
  31. Yvonne Shoemaker Shinkovich via Facebook says

    February 25, 2014 at 12:22 PM

    Prayers for Ryan!!

    Reply
  32. Melissa Smack via Facebook says

    February 25, 2014 at 12:16 PM

    Prayers for answers

    Reply
  33. Allison Hornung Weitzel via Facebook says

    February 25, 2014 at 12:12 PM

    Praying you get some answers fast.

    Reply
  34. Rhonda Francis Brown via Facebook says

    February 25, 2014 at 12:08 PM

    Prayers that you find the problem and that it will be a positive outcome!

    Reply
  35. Paul Rapsawich via Facebook says

    February 25, 2014 at 12:06 PM

    Prayers for Ryan-keep fighting!

    Reply
  36. jo says

    February 25, 2014 at 12:03 PM

    We are worried, too, Ken. Have been praying for an update and cannot thank you enough! Stay strong is all I can think of to say, and this means all of us. We will just have to wait for labs to come in.
    Love and prayers.

    Reply
  37. Faye Sinclair Allen via Facebook says

    February 25, 2014 at 11:54 AM

    continue praying for Ryan and for you and Sue for strength

    Reply
  38. Marie Long via Facebook says

    February 24, 2014 at 10:32 PM

    I am praying and will share this for my friends who are prayer warriors!!!!

    Reply
  39. readbeyondwordsmcshea@verizon.net says

    February 24, 2014 at 9:22 PM

    You are beyond a good parent – I admire you so much! Is it possible that it is a sign of progress? That he is silently striving through this? I pray for all of you. The violence he suffered over nothing is unspeakable.

    Reply
    • Ryan's Rally LLC says

      February 25, 2014 at 12:02 PM

      That would be nice.

      Reply
  40. debra says

    February 24, 2014 at 8:39 PM

    Sending prayers, Please keep us posted. Here is a great big hug

    Reply
  41. Tony says

    February 24, 2014 at 8:36 PM

    Sorry to hear Ryan experiencing discomfort. Sounds like the Doctor validated the great work you do; good job Ken! We will pray for you and Ryan, and hope he is feeling better tomorrow.

    Reply
  42. Holly Ledford via Facebook says

    February 24, 2014 at 7:25 PM

    Sending Ryan and you Prayers for a quick recovery! He is so lucky to have you as a dad, one of the best and supportive families! Stay strong. ♡

    Reply
  43. Anna says

    February 24, 2014 at 6:39 PM

    Whatever it is that’s going on with Ryan he is very lucky to have his in home personal ICU nurse…..that’s you Ken! It’s all about picking up changes early, doing the tests, eliminating what it is not and putting the puzzle pieces together. Praying that whatever is going on is easily remedied.
    You are right Ken, this is attributed to Jonathan May, Austin Vantrease and anyone who stood by and did nothing to help.

    Reply
  44. Kathryn Beggs Howlett via Facebook says

    February 24, 2014 at 5:39 PM

    so very sorry to hear this. Hoping for an update soon with good news. Love to you.

    Reply
  45. Kathy Spence via Facebook says

    February 24, 2014 at 4:24 PM

    I rarely comment, but I’ve been following your posts for the past 2 or 3 years. Ryan and your family are in my prayers. I’m amazed at the dedication you have, taking such great care of Ryan. Many wouldn’t be able to handle it for the long haul, as you have. I’m sorry to hear about this latest problem–I hope you can get to the bottom of this very soon. I’m wondering if he’s developed gastroparesis–you might want to search this and see what you can find out. This could explain the high residuals you’ve been getting. I hope this is helpful, and please keep us posted.

    Reply
  46. Tara says

    February 24, 2014 at 3:58 PM

    Sorry he is going through this :(.. I will be praying!

    Reply
  47. PK Miller says

    February 24, 2014 at 3:14 PM

    Sorry to hear of what Ryan is going through. Some posters have made what sounds like excellent suggestions. You know Ryan’s body as well as you do your own. So, if your gut tells you something isn’t right, go with that gut feeling. You all continue in a lot of prayers. If we have the Prayer Table at our Cathedral, Wednesday, I will, of course, add Ryan’s name and that night, he will be lifted up in prayer in the Worldwide Episcopal Network. Deacon Sue, Dean Collum and several others from our cathedral & the Albany Diocese are leaving Wednesday morning for their annual work trip to Haiti but Sue assures us someone will upload the names & intentions brought up at the Prayer Table. God be with you & keep you all in His care. Please take care of yourself, Ken.

    Reply
  48. Karyn Mandracchia Ahern via Facebook says

    February 24, 2014 at 3:00 PM

    Praying for Ryan and hopes he feels better soon. My heart just breaks for all of you. May God Bless you all <3 <3

    Reply
  49. Stephanie Stotler via Facebook says

    February 24, 2014 at 2:40 PM

    Thinking of you Ryan sending lots of prayers

    Reply
  50. Rita Caporicci Hoop via Facebook says

    February 24, 2014 at 1:24 PM

    Poor Ryan.. Thank you for sharing these concerns so that we can all brainstorm and pray for him. Let us know what you learn and how Ryan is doing over the next few days. Love you, Divineys — you got this!

    Reply
  51. Paula says

    February 24, 2014 at 1:23 PM

    Praying for healing for our Ryan and comfort during this time of extra stress and worry. I’m very sorry this is happening. I am thinking about you all throughout the day. Please keep us updated as you can. And please give Ryan a big hug from me.

    Reply
  52. Jeannine Weeks Whiton via Facebook says

    February 24, 2014 at 1:21 PM

    I hope Ryan feels better soon!

    Reply
  53. Joy Baker Ellena via Facebook says

    February 24, 2014 at 1:12 PM

    Prayers for Ryan

    Reply
  54. Candy Allen Bauer via Facebook says

    February 24, 2014 at 1:02 PM

    So sorry for what you all continue to go through. It sickens me to think that the scum who did this will one day be free to resume their lives with relative normalcy, while neither Ryan or his family will ever be the same. You and Ryan are always in my thoughts!

    Reply
  55. Kaila says

    February 24, 2014 at 12:45 PM

    Sending prayers your way for wisdom and peace.

    Reply
  56. Jaime N Chris Lasley via Facebook says

    February 24, 2014 at 12:43 PM

    I’m just wanted to let you know that you give me such strength, the love you show for your family is Amazing. Your family are in my thoughts and prayers every day

    Reply
  57. Jaime N Chris Lasley via Facebook says

    February 24, 2014 at 12:43 PM

    I’m just wanted to let you know that you give me such strength, the love you show for your family is Amazing. Your family are in my thoughts and prayers every day

    Reply
  58. Wendy Augustine says

    February 24, 2014 at 11:56 AM

    It’s not fair. It’ll never be fair. One night two sociopath’s ruined a beautiful boys life and his family’s. A more loving and caring father there will never be. I hope Ryan’s improving.

    Reply
  59. Maura Demarco via Facebook says

    February 24, 2014 at 11:45 AM

    Another thought….he must be having shortness of breath. I don’t know how you check veins with stethoscope–usually arteries are checked—but you may also want to rule out a pulmonary embolism PE. Fever with increased hr could indicate pe, or, he is in pain due to gastroparesis, which in turn will increase hr. Good luck. Keep us updated

    Reply
    • Ryan's Rally LLC says

      February 24, 2014 at 4:53 PM

      Sorry, I meant arteries. Also, we did check for blood in his bowel movement and none was present. Everything you’ve mentioned has not been ruled out.

      Reply
  60. Gail Doyle via Facebook says

    February 24, 2014 at 11:45 AM

    Always here Ryan, Stay strong! Praying for all <3

    Reply
  61. Brenda Rasmussen says

    February 24, 2014 at 11:41 AM

    Sending prayers. Stay strong as I know you do.hopefully nothing serious.your family is always in my daily prayers. Brenda

    Reply
  62. Maura Demarco via Facebook says

    February 24, 2014 at 11:34 AM

    Please Google gastroparesis—the inability of the stomach to properly empty itself of food. It is a nuclear medicine test. I do hope the doctor who evaluated him suggested this. Let me know..I would also have his stool checked for blood.

    Reply
  63. Teddy Heather Goddard via Facebook says

    February 24, 2014 at 11:27 AM

    I am hoping and praying this is absolutely nothing to worry about and it will all work itself out ASAP. Hang in there, Ken, you are amazing through both good and bad times. We’re all here sending prayers to Ryan and the Divineys.

    Reply
  64. Jessica Fields via Facebook says

    February 24, 2014 at 11:26 AM

    Praying for you 🙁

    Reply
  65. Carla Liberty says

    February 24, 2014 at 11:15 AM

    Praying for answers to Ryan’s symptoms, and for a better day for all of you.

    Sending love/hugs from the Liberty family.

    Reply
  66. Julie Northey Lane via Facebook says

    February 24, 2014 at 11:03 AM

    Praying…

    Reply
  67. Ann H Tearle says

    February 24, 2014 at 10:43 AM

    Make sure they include magnesium in the comprehensive chemistry panel–it is not a regular part thereof.
    God bless you Team Diviney. Always praying for Ryan and you all. Hang in and prayers continue. Love, Annie

    Reply
    • Ryan's Rally LLC says

      February 24, 2014 at 4:51 PM

      Yes, this is always checked when we do blood labs for Ryan.

      Reply
  68. Philip Marinakos via Facebook says

    February 24, 2014 at 10:43 AM

    Sending prayers from Fairfax, Va.
    Strength and courage.

    Reply
  69. Mary Condy Mitchell via Facebook says

    February 24, 2014 at 10:41 AM

    🙁

    Reply
  70. Mary Condy Mitchell via Facebook says

    February 24, 2014 at 10:41 AM

    🙁

    Reply
  71. michaela hartley says

    February 24, 2014 at 10:41 AM

    Praying for a positive outcome !

    Reply
  72. Jo Hobbs via Facebook says

    February 24, 2014 at 10:11 AM

    Stay strong! <3

    Reply
  73. Melody Stanley Exline says

    February 24, 2014 at 9:56 AM

    So sorry that Ryan isn’t feeling well. I hope that whatever is ailing him can be found and fixed so that he is doing better soon. Will be praying for you all!

    Reply
  74. jo says

    February 24, 2014 at 9:54 AM

    Sorry to read this!
    Electrolyte imbalance? Check, “Magnesium for arryhthmia,” or some such… …you know more than I. Praying it is something simple. May need some labs, but don’t have to tell you. I know you know.
    Love and prayers ongoing.

    Reply
  75. Kay Beyers via Facebook says

    February 24, 2014 at 9:44 AM

    I’m sorry to read this 🙁 Hang in there ..sending my thoughts and love.

    Reply
  76. Lorraine Lundqvist via Facebook says

    February 24, 2014 at 9:42 AM

    Will the blood work identify proper functioning of his pancreas?

    Reply
    • Ryan's Rally LLC says

      February 24, 2014 at 4:49 PM

      In a round about way, yes.

      Reply
  77. Dianna Lynne Martin via Facebook says

    February 24, 2014 at 9:40 AM

    still praying for Ryan

    Reply
  78. Catherine says

    February 24, 2014 at 9:33 AM

    I wonder if it could be an ulcer. Ulcers can cause partial or full obstruction making it more difficult for his “food” to empty from the stomach. They can also cause pain. Something to ask doc about

    Reply
  79. Kerri D. says

    February 24, 2014 at 9:25 AM

    So sorry to hear about this. I’m thinking of you from here in Morgantown, Ryan! I hope you’re back on the path to recovery soon.

    Reply
  80. Lorraine says

    February 24, 2014 at 9:25 AM

    It is so difficult to comment on your posts. They leave me so sad and concerned for both you and Ryan. I hope you figure this out soon.

    Reply

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