Last year, 2013, was significant in a major way. Namely, Ryan went the entire year free of infection. Not once did he need an oral antibiotic! I’m wondering if this is unheard of for someone in his condition. The reality is that this population is prone to urinary tract infections (UTIs), respiratory infections, skin infections, and just about every other infection that can touch the body.
Sadly, this vulnerability is usually what gets them in the end. If not the infection, then their accumulated resistance to antibiotics that prevents them for ridding themselves of it. When you read that someone died of “complications from brain injury” it is almost always some common infection.
This had me scared. Especially when Ryan was on strong antibiotics every other month to treat recurring UTIs. He even needed to take one via an IV. It was the mother of all antibiotics. It was so chronic that his immune system was given a chance to recover before the next infection set in. You can see how easily this can spiral out of control.
I worked feverishly on finding a protocol to solve (or, at least control) it. For now, it is working flawlessly. My idea was to not give harmful bacteria a chance of surviving. For one, I drastically raised the acidity of his urine. Yes, this is why you see things like cranberry pills and raw, unfiltered vinegar on Ryan’s Wish List, among other things. Thank you so much for buying these and keeping Ryan healthy!
Then, he gets three liters of water each day. This keeps him flowing, both in frequency and volume, and prevents stagnation in the urinary tract. The expressions “peeing like a race horse” and “piss and vinegar” are quite appropriate for him.
But that’s only half the battle. Beyond this we do things like change his external catheter and drainage bag twice daily and never allow urine to accumulate in the tubing. Let’s not forget how much he exercises throughout the day either. This keeps his systems functioning.
It’s an endless routine.