These past two weeks were slammed. What the youngsters would call “crazy busy”. The good thing is that it had no impact on Ryan. It was all on me to get through some tedious legal information-gathering. The frustrating part is that all this work probably won’t even matter. Still, I must try — with all my might — to convince people and institutions (who should know better) that Ryan is entitled to his beliefs.
Today also marks a full ½-year since Ryan’s last urinary tract infection. I’m feeling quite confident that I now have this under control, if not solved entirely! You know what? I declare victory on this if he can make it a full year. Another milestone that he will meet at the end of the month is that it will be 2-½ years since his last respiratory infection! He’s amazing.
Yes, physically, Ryan has been quite healthy.
That’s not to say it’s easy keeping him in pristine condition. Just these past two nights his oxygen was a little low. I suspect it’s caused by the pollen (mainly grass for us now). It forced us to deep-suction him; which is passing a catheter through his nasal cavity and down his throat to clear away mucus. Ryan HATES having this done to him and he coughs violently. We hate doing it. He fights us every step of the way (which is a good thing) by purposely turning away and doing what he is capable of to make us stop.
No doubt, he is definitely more alert — and hopefully, aware — of his environment.
So today will be dedicated to ridding the house of dust and allergens. I’ve already turned the stand-alone air filters to high. I flipped the whole-house HVAC to run continuously. I’ll replace all the filters (about a week earlier than scheduled). I’ll vacuum, I’ll mop. I’ll dust with a wet rag. I’ll shampoo the dogs. I’ll take all the laundry upstairs to be washed. My aim is to have it so clean that we could manufacture precision semi-conductors in this house!
Looks like another day that is “crazy busy”.
Ann H Tearle says
I pray every day for your renewed energy and strength to do each day what Ryan needs. God bless you SHSP NGA, Love, Annie
Jo Hobbs via Facebook says
Too much on your plate, Ken! Call in the professionals for this big job. I think in Ryan’s best interest, it would be a covered expense. Wondering what the cost of a whole-house electronic air cleaner connected to the heating/air conditioning system would be. It might save Ryan from suctioning therapy.
Anna Schreiter via Facebook says
You are all so amazing!!! Prayers from wisconsin
OMG! I haven’t gone two years without a respiratory problem! Great job Ken!
Patti Carroll Bottcher via Facebook says
Congratulations on those milestones! Keeping Ryan healthy is a wonderful and busy thing!
Gail Doyle says
Ken , Hopefully all your efforts and work will pay off and
Justice will be served! That’s so great Ryan is 6 mos with
no UTI and over 2 years and no respiratory problem .
(I remember how sick Ryan was in the hospital) You all
have been an amazing family keeping Ryan so healthy
and looking so good. Will continue always to pray for more
and more good things to happen .Have a good day and
please say hi to Ryan.