If you remember, at the beginning of this year I installed multiple cameras and continuous surveillance in and around my home. It’s top-of-the-line, with night vision so clear that the room can be pitch-black and it lights it up like daytime. Almost every square inch is covered by at least two cameras from different angles. […]
My intent today was to write only about tonight’s local (Northern Virginia) Fundraiser. And, I will. Before I do this, though, I have to share how the day began. It was quite a scare.
Tarsorrhaphy Ryan’s last eye surgery some three weeks ago, called a partial-tarsorrhaphy, is successful to this point. In everyday terms, a tarsorrhaphy is nothing more than sewing the eyelids shut. Anyhow, we will know even more today. The eye surgeon is seeing him later in the day to make some “adjustments”. Namely, snipping a few […]
It’s was a couple of rough days for Ryan. Hopefully, it has ended. From overnight Sunday until later in the afternoon yesterday I was struggling to keep his oxygen saturation up. Oxygen saturation, in layman terms, is really nothing more than a measurement of how much oxygen is reaching the body’s cells. Anything above 92% […]
Last week Sue meet with a surgeon at Children’s Hospital (Washington, D.C.). It was a pre-operative meeting, where she gave Ryan’s medical history and then acquired clearance for surgery to have the internally implanted baclofen pump removed. All went as expected and Ryan is in line to have it removed.