Feel free to click on any of the links; I have it so they will open a separate page/tab in your browser and keep this post in place.
- Grace Singers. In the first concert of their series, held at Hamlin United Methodist Church (Hamlin, WV), $1,000 was raised for Ryan’s Special Needs Trust Fund. The next scheduled concert is November 10th at Belle Meade United Methodist Church. A third, yet to be scheduled, is planned for the host church, Community of Grace (Huntington, WV). This one will be streamed live online! You can read about the concert series here.
- About Ryansrally.org page. I updated this page over the weekend with some interesting information about the website and you, the readers. I’m really proud of this website and recognized that it has evolved because of all your suggestions and criticisms. I hope you realize by now that I read every comment (I also read them to Ryan… well, most of them). Sometimes I just want to know you’re still here… still keeping Ryan relevant in your life… that you haven’t forgotten. I know tons of people visit each day, but it’s those 0.4% — yes, only four-tenths of one percent — that take the time to comment on any given average day. I crave this feedback.
- Sue. It meant so much to both Sue and myself to read all the kind comments on last Friday’s post, Her Turn to Cry. As an update, her migraine that started on Thursday morning finally began to let go on Saturday afternoon. Turns out, she had a sinus infection at the same time. She went on medications Monday evening and was feeling somewhat better by last night.
- Deck. It’s done, for the most part and I’ll post pictures soon. Thank you Blue Moon Construction (see their ad in the right sidebar) for your continued generosity and kindness! It’s just so amazing what they do for us! They are a top-notch company that cares about the community they serve. Unfortunately, with Ryan’s allergies in full swing, we had to put off using it. The rain we had Monday did wonders for him and the coughing isn’t nearly as much. Now we are just waiting for a day with warmer temperatures since the tickle in his throat is gone. Last night I didn’t hear him cough once and the nurse confirmed it. A good read is how Sue described our wish to add the deck, We Never Leave Home. The next project they are helping me with is adapting our garage into a “Man Cave” for Ryan. The theme? Sports, women, and dogs… because that’s what he likes (in no particular order). Yes, it will be called a Man Cave, but it will be multi-purposed. For one, I will relocated Ryan’s Rally LLC office space to it. I was able to get that lease for (next to) nothing, but only for one year. I love taking Ryan to work with me and I never want this to end. Second, it will become his therapy area where I can move all the bulky and loud equipment. Third, it will remain a garage (when needed) and allow me to experiment with contraptions for Ryan’s recovery. Fourth, it will be a special place for the two of us to run around in our boxers and generally be offensive, away from my wife’s virgin ears. No women allowed (unless inappropriately dressed)!
- Mega Yard Sale. Unfortunately, it won’t be held this year. Our hope is this will happen in the spring, but I’m more-than-worried. This nationally recognized event (Oprah’s O Magazine) has been the single largest fundraising event each year and helps offset the $2 million needed annually for Ryan’s care, comfort, treatment, and recovery. Missing it hurts… a lot. It brings in significant money ($25,000) but I also view this as a huge public relations event to keep Ryan relevant.
- Wikipedia. I’d like to create an entry for both Ryan and this website. Does anyone have experience with setting this up and would be willing to take it on as a project? Actually, the more that can help, the better. I really don’t believe it will be difficult since the information is available on this website. If you think this is something you can do then you can let me know by completing the following form. Oh, and for your assurance, no one else can see the information you type in the form… just you.
Wikipedia Contact Form[contact-form subject='[Ryan%26#039;s Rally: We Got This’][contact-field label=’Name’ type=’name’ required=’1’/][contact-field label=’Email’ type=’email’ required=’1’/][contact-field label=’Telephone’ type=’text’/][contact-field label=’Wikipedia Experience?’ type=’radio’ required=’1′ options=’Yes,No’/][contact-field label=’Comment’ type=’textarea’ required=’1’/][/contact-form]
- Overnight Nursing Coverage. September put a whoopin’ on us with several vacant nights. October seems like it might be completely covered (one night is possibly not). Again, I place most of the blame on a failed — and ever-failing — health care system and national policy over many a decade. Nurses and their agencies are being squeezed. Sadly, for those who want their loved ones at home, it is the patient (or family) that picks up the slack.
- Upcoming Appointments/Last Occurrences. Over the next few months I’ll be taking Ryan in for two assessments: 1) Sleep Study, and 2) Bone Density Test. Another procedure we’re exploring is getting Ryan’s eyelids relaxed a tad more (i.e., opening the eye) by taking a stitch out from each partial-tarrsorraphy. As a reminder, Tarsorrhaphy is a surgical procedure in which the eyelids are partially sewn together to narrow the opening. For Ryan, we had this done to protect his cornea and save his eyes; since he never closes his, the dryness was scarring them. As far as the last time Ryan had any sort of infection, it’s coming up on one year in late-Novemeber. That was the last time he suffered a urinary tract infection (UTI) that were once chronically affecting him! In December it will be three years since his last respiratory infection; where he suffered pneumonia and was hospitalized for weeks over Christmas. Yes, my friends, he is in pristine physical health.
- Spa Lift Fundraiser. The goal of $4,000 was
reachedexceeded yesterday ($4,100)! Thank you so much for making this happen for Ryan. Believe me, a day doesn’t go by where I am not thankful for having such caring people looking out for my boy. What would I ever do without you? He is in such wonderful condition because of you. You know that, right? You give him comfort every second of the day. This latest act of kindness will not only give his muscles therapy and relaxation, but also will give him back something he loved so much! I immediately started the process to get this in place by having the supplier take measurements. I’m hoping the order will go in next week and it’ll be installed by the end of this month. I’ll post pictures (or video) when this becomes a reality, I promise.
- Anniversary. Next month, on November 7th, marks the fourth anniversary of the night Ryan was brutally beaten (by Austin Vantrease and Jonathan May, both of Newark, Delaware) into oblivion. That day hurts like unholy hell. Time does not heal all pain… trust me on that one. Please remember him on this anniversary, if none other. I’m kicking around the idea of doing something special… you know, to help take the edge off and refocus my mind. An easy thing would be to ask for people to consider a recurring monthly donation that begins on that day (and continues on the seventh of each month). The thing is, I’m worried how it might look if I did. Another (perhaps crazy) idea is to pool people together to buy a block of lottery tickets. I need to think this through, but it just might work! If nothing else, it would be fun and exciting. What do you think, is it worth trying? The winning(s), if any, would be split among the participants and a certain predefined percentage to Ryan.
There you have it. Ten things that I hope you find interesting that are happening in Ryan’s life now. I’m interested in what you’re thinking about any of the topics. If you think there are others who would appreciate catching up too then please share this post on your social media. As they say, sharing is caring! What they don’t say is that it drives readership and increase search rankings; considered gold by website administrators.
Before I wrap it up today I want to tell you how much I appreciate you. Thank you for coming back and checking on Ryan. Someday, hopefully, Ryan will know just how much you have done for him. If not in this lifetime, perhaps another? Thank you for loving my son. There is no way possible that I (or my family) could do this on our own. Ryan is well taken care of by so many people I might never met. People who aren’t looking for personal gain. People who surrounded us, protected us, and carried us through the pit of hell.
Please, don’t ever leave.