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You are here: Home / conference / Finding Consciousness: My Duke University Impromptu Talk

Finding Consciousness: My Duke University Impromptu Talk

April 1, 2013 by Ryan's Rally LLC 23 Comments

Here is the video from the Duke University “Finding Consciousness” conference where I spoke and attended. I hope you watch the entire production because it will certainly help you understand the challenges faced by both the patient (or caregiver) and medical community. The length is roughly 23-1/2 minutes; to be television-ready.

The video only has a small handful of all the presentations given over the three days. I am proud to be one of them.

Specific to me, I am featured twice. Once at the 2:35 mark (through 4:13) and again at the 17:53 mark (through 20:32). That’s almost 20% of the entire video devoted to what I had to say!

 

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  • Wired Magazine: Duke Conference Top Speakers. I’m One!

 

 

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Filed Under: conference, News Tagged With: Austin Vantrease, Duke University "Finding Consciousness" conference, Jonathan May, Ryan Diviney

Comments

  1. Kimberly Kimm Lehnert Oswald says

    April 5, 2013 at 11:07 PM

    Fantastic! Thanks for sharing! Very informative…and thought-provoking!

    Reply
  2. Tony says

    April 3, 2013 at 8:44 PM

    Great job Ken. You presented your views clearly and concisely; and came across as a very credible resource, one who learned from hard work and experience as opposed to many of the educated experts in attendance. You hung in with them very well.

    Reply
  3. Karen says

    April 3, 2013 at 5:03 PM

    Wow, Ken – you Divineys are amazing!

    Reply
  4. Anna says

    April 2, 2013 at 2:15 PM

    Ken, With all of the medical attendees at the conference you were probably the expert in actual patient care. I am sure they were all in awe of you and the condition that Ryan is in. Great job Ken!

    Reply
  5. Grey Hubler says

    April 2, 2013 at 1:03 PM

    This is required viewing.

    Reply
  6. Vicky says

    April 2, 2013 at 11:32 AM

    Powerful. Would it be that there would be a video entirely with you because your 24/7 perspective from day one brings, in my opinion,murch more REAL information on the subject.

    Reply
    • Ryan's Rally LLC says

      April 2, 2013 at 11:52 AM

      I asked Duke University for my entire segment, but they claim it is no longer available.

      Reply
      • jo says

        April 2, 2013 at 2:05 PM

        Disappointing to hear this, to say the least! Damn! 🙁 I mean Dang.

    • Vicky says

      April 2, 2013 at 10:56 PM

      I won’t write what I am thinking!!!

      Reply
  7. Jo Hobbs via Facebook says

    April 2, 2013 at 9:38 AM

    Good job, Ken — I mean really good job! <3

    Reply
  8. Jo says

    April 2, 2013 at 9:33 AM

    We were away for a few days and wanted to wait until I could watch the video at home where it is quiet (too quiet sometimes). I will watch it again later today, since there are so many subjects that are covered — mindfulness, pain and the beginning/end of life, language decoders, healthcare system capabilities, locked-in state — too many to absorb all at once. Most of us are probably wondering if there are other conferences like this one, and where do we go from here. Sometimes I think I know a lot about TBI, but at other times, from personal experience, I think I know TOO much about this devasting condition.

    Just want to say that I agree, you ARE strong, and you continue to amaze us! Always here for you with much love and shouting to heaven, “In the name of Jesus Christ, Ryan, be healed!” I will spend today fasting and praying for Ryan. It’s a good day for a post-Easter fast!

    Reply
  9. mary Driscoll says

    April 2, 2013 at 7:08 AM

    This brought up memories of talking to my father who was in a coma, we had no idea if he knew we were there and could hear us as we spoke to him but for myself, in the two weeks of unconsciousness before he died, he somehow moved quite forcibly when I said two things which still haunts me to this day. I know he heard me, maybe he heard every single thing that was said in that unconscious and vegetative state. There has to be a way for communicating with all with varying stages of this…..It is probably being invented as I write this….the science of medicine 2013 is not what it was in 1913, or even in 2000. This was most interesting, glad Ken was able to
    give his wisdom, he’s living it.

    Reply
    • Ryan's Rally LLC says

      April 2, 2013 at 11:51 AM

      You make a great point that I try to advocate: Non-communicable does NOT mean non-conscious.

      Reply
  10. Rita says

    April 1, 2013 at 10:49 PM

    Wow… you fit right in with all of those elite medical experts, Ken! In addition to the incredible care which you and Sue provide for Ryan, we are most thankful for his responsiveness to your loving touches and voices. What a blessing your family is to one another and all of us! Stay strong and keep fighting, Ryan!! We are following you all the way to victory <3

    Reply
  11. Paula says

    April 1, 2013 at 7:54 PM

    Hi Ken, thank you so much for sharing this with us!! You did such a good job capturing the many emotions associated with dealing with brain injury in a loved one. Your comment about walking the halls at a rehab center and seeing people with no one there for them was jarring. You’re absolutely right – what chance do they have if no one notices they have a UTI or that they’re pale or less responsive? Making matters worse is that they may have great difficulty communicating, almost guaranteeing no one will notice them.

    Unfortunately I think a lot of patients are written off — and some of the presenters at Duke’s conference keyed in on this. Assumptions are automatically made about TBI patients that may not be true — and if the medical community at large is unwilling to provide the best of care for these patients, how will it ever be known what the potential for recovery is? This is where Ryan comes in, because you and your family have been there every step of the way for him, always noticing when something isn’t right and acting on it. But it goes way beyond that, because you’re not just “maintaining” Ryan’s physical being, you’re exploring every avenue to vastly improve it.

    You summarized it well Ken when you said that the whole community of professionals needs to come together to address TBI. It seems there is so much more that could be done. I pray that as a result of this conference, there will be a renewed commitment to provide better care for TBI patients, and more resources devoted to understanding and treating brain injury.

    Meanwhile, you and Ryan will continue to do your part to move the ball forward, allowing the opportunity for new discoveries to be made. Most breakthroughs start with a belief and the willingness to pursue that belief. Your belief in Ryan’s fortitude and strength was right; Ryan has demonstrated his ability to overcome obstacles many times. He does things now that indicate the progress he has made. And he’s not done yet, all his potential is there and slowly unfolding. It is a privilege to be able to watch it happen. Thank you for letting us be a part of it!

    Sending you love, prayers, hope and admiration for all you do.
    Paula

    Reply
    • Ryan's Rally LLC says

      April 2, 2013 at 11:53 AM

      I wish I could say what I want it as wonderfully as you.

      Reply
      • jo says

        April 2, 2013 at 2:01 PM

        Paula is a remarkably talented writer and so are you, Ken.

  12. David Chagnon via Facebook says

    April 1, 2013 at 7:11 PM

    What a great thing 🙂

    Reply
  13. Carla Liberty says

    April 1, 2013 at 2:37 PM

    Wow, this was really wonderful and very informative. Just this snapshot, a sneak peek into the entire conference, had me wanting to watch/learn more. I loved how they humanized this with your experience, Ken. I see more talks, more events opening up for you. And of course this means more knowledge/information which could be helpful to Ryan or others. Congrats on a job well-done.

    Reply
  14. Gail Doyle says

    April 1, 2013 at 2:07 PM

    Ken, Thank you for sharing.. So very interesting. And you did a great job
    love gail

    Reply
  15. Tracy Kathleen Clokey via Facebook says

    April 1, 2013 at 1:50 PM

    This is awesome!

    Reply
  16. Gina says

    April 1, 2013 at 1:30 PM

    This was a great video. You spoke from the heart and it showed!!

    Reply
  17. PittsburghHere says

    April 1, 2013 at 1:10 PM

    Incredibly proud of you, Ken. You are just amazing.

    Reply

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