No complications cropped up over night (Yippee!), meaning Ryan is scheduled for discharge at noon today. That’s not to say Ryan had a good night. He didn’t. He was in discomfort that waxed and waned in direct correlation to the pain medication’s schedule. I will say, to my surprise, he isn’t moaning any longer. This stopped sometime around four in the morning. I’m just hoping the ride home (and transfer) doesn’t knock him around enough to make the pain resurface.
While here with Ryan at Children’s Hospital, we used the little time we had to get the ball rolling on several other fronts. For one, we lined him up to get a urodynamics test (probably later this month at Georgetown University). This is another approach to getting to the bottom of the chronic urinary tract infection. This test essentially tells how his bladder and urethra are behaving.
Second, we opened the door to get him in to Children’s Hospital’s Endocrinology Clinic. Specifically, we can use this branch of science to get a biological profile of how Ryan’s endocrine system (i.e., glands that secrete hormones into his system) might, or might not, be contributing to bone density lose and urinary tract infections, among other things. Beyond this basic system, many organs (like the kidney, liver, heart, etc.) that are part of other body systems have secondary endocrine functions. Confused? Yeah, me too. I’m sure I’ll understand it more as we get into it, but I described it as best I can… given how little I know.
I believe I purposely forgot how little rest a person can get while at the hospital. Unlike at home where we quiet and darken the house at night, keeping disturbances to a minimum, this is not a primary goal of a hospital. Nor should it be (at least in some patient’s cases). My only suggestion is, perhaps, the multiple groups of teams (across many disciplines) attempt to evaluate Ryan at a given time. A single examination then could be shared among doctors.
Now, for some light-heartedness.
People seem on-board with how I want to handle saying good-bye to Ryan’s baclofen pump. Remember I said I’d like to take it to a safe area and unload a full clip of 9mm rounds into it? Apparently that’s just not enough for you guys! People are wanting me to video tape it as I do it. All I can say is, I will… for you! I’ll point one camera at the pump and another on me, recording simultaneously as I send a hail of lead downrange.
For the record, I might be a bit rusty with my aim. Hell, I used to be a dead-eye and could hit anything. I just might need to practice a
bit lot right before I flip the video on to record. I could tell people that I want to get to know the new gun (which is true), but it really has more to do with my technique… and aging eyesight.