Every now and then I have so much to tell you that a list is the best way to do it. Otherwise, the post would likely be unorganized and tough to read.
- Baclofen Reduction. Later this morning (eleven o’clock) will be twenty-four hours since the dosage reduction to 225 mcg. Ryan is not showing any noticeable change either way (discomfort or awareness). The next reduction is tentatively scheduled for November 22nd. I’ll see how Ryan does over the weekend before solidifying that appointment.
- Patio/Walkway. Rough draft plans — for a patio off the basement door and walkway to the driveway — are expected sometime today. Two companies, Commercial Concrete and Virginia Concrete Company, are donating all labor and material! Even more, they are redoing our front entrance with a ramp and an upgraded sidewalk. After receiving the plans, I’ll run it through the notorious Homeowners’ Association for approval. I wouldn’t expect ANY push back.
- Butt Rash. It’s still present, but slightly better.
- Morgantown, WV Fundraisers. Tonight at 8:00 pm, the WVU Student Body is hosting a Benefit Dinner at de Lazy Lizard on High Street. The Golden Finch will be catering the event. The event is free to the public. On November 10th (also tonight), 11th and 12th, The Golden Finch is also hosting a fundraiser for those who wish to have a sit down meal.
- Wish List/Store. Please think about using it for your holiday shopping and/or helping Ryan (we are critically low on some items and could use your help).
- Civil Lawsuit. It is still in the fact-finding phase and no trial date is set. I wish I could tell you more, but things are lining up nicely.
- Eyes. Ryan’s eyes have been doing well for a month or so now. Dr. Hinkle (a.k.a., the nicest man in the world) is coming by today to look at them (like he does almost every week). I’m a bit worried that Ryan might have something going on in his left eye. It got really bloodshot overnight.
- HBOT. Ryan began his 30-day cycle last Saturday.
- Kari’s Car. Thank you all for the recommendations! As it turned out, it was a costly leak in the radiator. She had it replaced.
Oh, and A.L. I am very happy to know that Austin Vantrease is well aware of his surroundings and I hope he has to serve his full sentence. Think his cell mates are making sure he feels well loved?
A.L. who are you? All of your comments you have left have been negative, rude and mean. YOU are sick. And knowing that you are such, I am going to ignore any other posts you make and hope everyone else does likewise.
Ken, just read an article on msnbc (I read CNN too Sue!) titled, “Some people in vegetative state are aware, MRI shows.” It stated that 3 of 16 patients thought to be ‘entirely unconscious’ were actually aware of surroundings. I believe Ryan is aware and will be able to let you know someday!
A. L. says
So you HOPE that he’s been aware of being trapped in his body and unable to communicate for two years? That is sick.
Gail Doyle says
Ken ,That is some long list. Glad so far Baclofen reduction has no bad effect, really pray it helps Ryan’s awareness. So wonderful of those people to give time and materials to make patio and walkway,you really need them~ Is there any change in Ryan at all,after HBOT treatments? Good Luck with Dr Hinkle and that there is no infection with Ryan’s eye~~. You know we’re all here for you and family whether in person or in spirit Stay Strong Hugs to Ryan Love Gail
Hello Team Diviney!!
All of us know how many supplements, medications and supplies the Divineys go through every day to take care of Ryan. When people refer to “collateral damage,” this is part of it — an unending series of expenses required to help Ryan maintain good health. Ken has done a tremendous job providing superb care for Ryan.
Ryan’s family is doing everything they can, and sacrificing much, in order to help Ryan continue to recover. In spite of the constant crush of work and fatigue, they’re still doing it for their boy — our boy.
The season of giving is of course year round — but the holidays emphasize the importance of helping those in need. I would like to ask that Team Diviney members consider asking their family members and friends to look at the wish list and think about giving a holiday gift for Ryan’s care.
As most of you know, Ryan and his family spent their last two Christmases in the ICU ward of a hospital. Let’s all work together to make sure this Christmas is a happier one for this family that has suffered so much.
And … *thank you* to every person on Ryan’s team for helping the Diviney family. The bible says love bears all things, believes all things, hopes all things, endures all things. Love never fails. You are wonderful people.
Love & prayers always,
So much going on here! Don’t know how you keep up with it, but I am glad you are in charge, Ken — the best man for the job! Glad there are no unusual effects from Baclofen reduction.
So many wonderful, caring people out there. I had heard about the walkway, but the ramp and upgraded sidewalk addition is great news, too. Ashburn is my kind of town, because my kind of loving, caring people live there. Have a great day! Love and prayers always.
You may have already done this and I missed it. But, is there way to determine what is the most present need for Ryan on the wish list?
Yes, I put the priority in the description when you visit the store.
Thanks, Ken. I just saw that. Once you receive the needed items, do you then change the priority status? I’m going to try to place an order today.
Every day I take stock of what was ordered and adjust the priority. I’m working on local (or national) distribution channels. In fact, already added a couple in the product’s notes.
Carla Liberty says
Jane – I know it’s great using Amazon Prime! 🙂
Just curious….why would someone give a thumbs down to Ken’s comments about shipping? 🙁
Carla Liberty says
Ken, a few days ago I ordered something from your urgent list (I can’t remember what it was now but you could purchase in quantities of 2-20 and it was something Ryan takes twice a day). I don’t remember there being any shipping on this order or any of the orders I’ve done for you. The reason is because I am enrolled in the Amazon Prime Shipping where you pay a certain amount every year and they ship 2-day for free. I order enough that it pays for itself in one-two shipments. I think it is $75 per year. But then again, I use if for birthdays/holidays/Natalie’s college textbooks/our office supplies, etc. so it just makes sense for me. Plus I’ve never had a problem with any of the merchandise or shipments….. If people do a lot of shopping at Amazon, they should look into Amazon Prime if they haven’t already….it really is worth it.
Hope Ryan is having a good day today! Hugs 🙂
Jane H says
Carla – I do the same thing on amazon. Another advantage is the one day shipping, if needed, is only $3.99.
Ken – thanks for the amazon reminder. I typically buy a lot during the Holidays and will be happy to go through Ryan’s site to do it!
Updates on Ryan are so appreciated. I love hearing how he is doing. I’m also so thankful for all of the people who donate their time and materials out of the kindness of their hearts. You are so deserving. I shop for Ryan regularly, if we could only do something about the dreaded shipping charges, unless you pay he expediting charges, the delivery takes in excess of a week – I know you sometimes need these items sooner, but sometimes, the shipping could exceed the cost of the item. I would rather purchase another item for Ryan than pay the ridiculous shipping. How can a bottle of pills cost over $20 to get it to you in 3 days…… I hope things will continue to improve with Ryan. Have you ever received the report from IBRF besides their input on the sleep study?? Any new techniques on the horizon. Give Ryan lots of hugs!! Always here~
Isn’t there a way to get free shipping on Amazon? I know we receive free shipping for the majority of the items we purchase. Maybe because we buy so much on Amazon? But, I’d assume this would be the case for Ryan too. Does anyone know how to find out about this?
I have provided instructions on the Store page on how to get free shipping.
FREE on Orders $25 and Over (some restrictions apply)
To take advantage of FREE Super Saver Shipping:
1. Place at least $25 of eligible Amazon.com products in your Shopping Cart. (Eligible items will display “eligible for FREE Super Saver Shipping …” next to their price.)
2. Proceed to checkout.
3. Ship your items to a single U.S. address.
4. Select “Group my items into as few shipments as possible” as your shipping preference.
5. Select Super Saver Shipping as your shipping speed. Your order will be delivered within 5-8 business days.
6. Place your order, and enjoy the free shipping!
I get all that – when you write urgent as a request, I try and get it to you faster. If 5-8 days is sufficient, than that’s what I’ll do.
Some of these items would be cheaper to get at Costco than buy online. Also, some of the items that are OTC, if you ask for a prescription from the doctor they may be covered by insurance. Even items for Ryans eyes and Mirolax (?) if the doctor feels he needs these items, I would ask for a prescription. I have almost completely stopped shopping online as the shipping is too much. Then to decrease the shipping they want you to spend so much money for your order. Its just hard with everyone struggling to make ends meet. Another thing, if items are purchased for Ryan can the purchaser use this on income taxes as part of their medical expenses? Just some thoughts.