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"I tell him I tried. I tried to keep memory alive; I tried to fight those who would forget. Neutrality helps the oppressor, never the victim. Silence encourages the tormentor, never the tormented. There is so much injustice & suffering crying out for our attention. We must take sides. We must interfere. -E.W.

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Baclofen Reduction Again Today

November 9, 2011 by Ryan's Rally LLC 17 Comments

It’s only nine days since I last decreased Ryan’s dosage. This will be his second reduction in three weeks. Aggressive, yes, but well thought out. In just a few hours he will be at (or around) 225 micrograms (mcg) per day. This is roughly a 14% reduction from his current level, which is huge. Ten […]

Filed Under: News Tagged With: Baclofen

Update: Baclofen, YGR!, UTI, Rash, Store, Sleep Study

November 1, 2011 by Ryan's Rally LLC 16 Comments

Since there are several things I need to cover, I’ll put these into a list again. I hope you don’t mind that I do this once in a while.

Filed Under: News Tagged With: Baclofen, Fundraiser, IBRF

Today: Baclofen Reduction Again

October 31, 2011 by Ryan's Rally LLC 8 Comments

It’s less than two weeks since the last baclofen decrease (13 days, to be exact), but it’s going down another 10% again today at my request. Ryan is currently just under 285 (mcg) micrograms per days, so this will take him to 256… give or take a few mcg.

Filed Under: News Tagged With: Baclofen, Blood, ICU

Chick Magnet Maiden Voyage

October 20, 2011 by Ryan's Rally LLC 15 Comments

Monday evening was the maiden voyage of the Chick Magnet. Earlier in the day I spent about an hour installing new tie-down straps (gifted to us through Ryan’s Wish List) to secure Ryan’s wheelchair. The existing bolts were rusted and I had to put every ounce of my strength to get them off. As is […]

Filed Under: News Tagged With: Baclofen, Eyes, Hinkle, Van

Baclofen Reduction Today

October 19, 2011 by Ryan's Rally LLC 6 Comments

In the ongoing balance between alertness and comfort, I requested (and was granted) another reduction in the level of baclofen Ryan receives daily. This will happen today. The daily dosage will be reduced 9.5%, from 315 to 285 micrograms (mcg). The next seventy-two hours — particularly the next twenty-four — will be stressful as we […]

Filed Under: News Tagged With: Baclofen

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Ryan's Rally, ℅ Ken Diviney
21092 Carthagena Ct.
Ashburn, VA 20147
kdiviney@ryansrally.org

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