I’m giving a newspaper interview later this morning for a story that will be published tomorrow. After this goes to print I’ll then issue a press release to several dozen news groups. I’ll post that press release on this website tomorrow. I wish I could be more specific, as I generally don’t like to tease…
BACLOFEN The ten percent reduction in baclofen, now some fourteen hours later, is not causing any noticeable problems. Ryan is tolerating it well. He had a peaceful night. I’ll be interested to see how he copes with the decrease once I get him up (in about twenty minutes) and exercising. I’ll also be watching for…
I’m a nervous wreck… and have been since yesterday. Really, nothing short of an exposed nerve. Ever since the reduction in the baclofen infusion rate yesterday afternoon I keep expecting the worse. I’m so scared I made the wrong decision to lower the dosage. So scared.
Seizure Medication When Ryan was in the hospital for pneumonia over holiday, he was put on seizure medication. Sue and I were highly skeptical if he did, in fact, need this. The Neurologist who prescribed this didn’t really take the time to learn Ryan’s case. He went off a ten minute clinical assessment while Ryan…
Glad to have yesterday behind. A bad day went to worse late in the evening. Recall, the first slap in the face was learning Ryan’s eyes are not improving. Without time to process this, another slap to the face. His forearm x-Ray looked even worse than the initial injury. The radius bone seems to be…