Please accept my apology for not putting out a post this week. I was consumed with legal affairs. Yesterday was spent on the road for a total of eight hours (round trip), plus around four hours involved in the actual legal process. It was a grueling day, both mentally and physically. Although vital to Ryan, […]
Guest Post: “Diviney”
by Karen Tiplady We knew him, the Ryan that was – a boy still, really, blossoming into a young man. We loved him; he was so charming and charismatic, hilarious, a smile that would light up a room. Yes, that was our Ryan, the neighborhood boy that rode the bus with our daughter, hid in […]
Ryan, I Know What You’re Thinking
I’m a mess. No. More than a mess, I’m a disaster. It’s my own fault… kinda. More on that later in this post. I spent last night without a wink of sleep. Instead, around midnight I built-up enough courage to fire-up Ryan’s laptop. In some ways, I was hoping it wouldn’t work. Problem is, it’s […]
Routine Blood Work Results
Ryan shows us when he is in pain or discomfort. It’s quite easy for us to identify this. He makes a distinct twisting motion with his entire body, usually with a moan. The good news is, we don’t see this often. Still, if he gets something as simple as a hemorrhoid he’ll let us know something’s […]
One Foot in Front of the Other
This past Saturday a 5K Race was held by the “Maniacs” to help raise money for Ryan. Early reports out of the Morgantown, WV area are that it was a success! I knew that someone from our family would likely attend, but didn’t know who. I prepared as though it would be me going by […]



