As any caregiver will tell you, it seems nothing is easy. Nothing! When it comes to brain injury, everything becomes exponentially more difficult. Caregivers also know that finding reputable advice or information is bordering on the impossible.
This is the reason so many reach out to me when they find themselves dealing with this situation. As much as I hate that I’m perceived as — and probably am — an expert, I relish the opportunity to help them. It’s one way that I can make some good out of an unimaginable tragedy. I still have trouble accepting that my son was beaten so viciously and now lives with severe TBI (traumatic brain injury), but it makes me feel good to be available to others.
Well, it sadly happened again yesterday.
A sister of a brain injured man found me through another person who follows Ryan on this website. She sent me an email titled “My brother has a brain injury and I need some guidance“. I read it immediately and could sense her desperation. Like Ryan, and so many others in his condition, her sibling is plagued with chronically recurring urinary tract infections (UTIs). The medical community seems to have no formal protocol for dealing with this infection in this population. I found this out the hard way when I researched solutions with Ryan’s UTIs. Ryan was getting one about every five to six weeks, then spending ten to fourteen days on antibiotics to eradicate it. I was no less desperate.
![The urinary tract. [singhealth.com]](https://i0.wp.com/ryansrally.org/wp-content/uploads/2014/03/kidney-stone-removal.jpeg?ssl=1)
The urinary tract. [singhealth.com]
As it turns out, it wasn’t one thing that protects him, but many… a cocktail of treatments.
For those looking for suggestions then you should take a look at Ryan’s Urinary Protocol. Heck, it might be interesting to many of you to see for yourself exactly what it takes to solve it. I promise, you’ll be surprised that it is so complicated! What most people only think about only when they get a UTI, we live every day.
I guess that goes for everything in Ryan’s life…
Sending Love, Hugs & Kisses to all <3
11 comments on this. People have no idea when you are the one peeing and pooping for another, and you Ken feeding someone, what goes into it. It’s a weird conversation to have but it does help when you have no where else to turn.
Am proud of you for sharing your knowledge with others. Smartypants is giving back, helping others, and providing caregivers with comfort that they are not alone. You rock!
I’m thankful that Ryan doesn’t have a UTI. Continue our prayers for God to help Ryan and his family.
Ken…I sent you a private msg on July 10th on Ryan’s Rally page! Please let me know if you got it:) Hugs & Prayers to you all:)
Ken,
You know that I think you are probably more medically aware than most doctors. Ry could not be in better hands. Thank you for being such a kind and compassionate resource for people that are struggling with similar issues. Much love to all of you!
<3 sending hugs to your family~
Thank you for sharing. As Ryan already knows, you ARE the best!
Ken you could update the Taber’s or rename it Ken’s
“Treatment Methods for TBI Related Medical Conditions,” by Ken Diviney, Dad and Caregiver for Ryan Diviney. Buy it if you want to know the best practices as researched and developed by Ken through trial and error. Learn about all the things you need to know that the medical community can’t or won’t tell you. (me and my wishful thinking!)
Thank you for sharing your knowledge with others in need, Ken!!! I am sure you are making a huge difference in the lives of many people struggling with how to help their loved ones. — I’ve always believed this is why we’re here to begin with ……………….
Love, hugs, prayers and still keeping the faith
Paula
I’m glad youre responding to others caring for someone w/a TBI. And the wonderful thing about the Internet is people can reach out to others & get advice. I can appreciate the trial & error process. We have a friend who is a quadriplegic due auto accident. He has an indwelling foley catheter, otherwise he’d have to wear a diaper–out of the question for a late 20something man. An indwelling catheter predisposes someone to UTIs. One of his Personal Care Attendants irrigates his bladder once every 3 days w/a weak vinegar solution. It’s kept him infection free for 3+ years. He also has to have his Attendants watch for decubiti–“bed sores.” He can’t feel anything below his chest. That’s what ultimately did in Christopher Reeve. Thanks for keeping us posted. I just added you all to our weekly Prayer Table at the Cathedral. Even Deacon Sue herself was out enjoying the unusually glorious weather. (We’ve had a never-ending monsoon season in Upstate NY! I just got in the door, Monday when it came down in buckets! My niece almost needed a rowboat to get from her office building to the garage! She was considering getting pontoons for her Hyundai!) God bless & keep you in his care.
PK & Tim
Ken,
It’s wonderful how you’ve been able to help so many (wish you didn’t have to) with your well earned knowledge. You fought Very Hard for all your info. Thanks from many and blessings to you
Love gail
It’s truly amazing, the wealth of knowledge that you have had to unfortunately accumulate. It is so disturbing that the medical community in general knows so little about brain injury and these people, these human beings, are left with their loved ones struggling so much to figure things out.