Okay, it about time to put out another list to easily let you know what’s going on. Hey, I know I’m all over the place from one day to the next and I appreciate that you keep up with this. Thank you. This is why I feel like I owe it to you to bring some order to my chaos every once-in-a-while.
Most of it I wrote about before. If you follow the website daily you could probably skip today’s post without missing much… but I hope you don’t. If I missed anything you might be wondering about then just let me know.
Things worth knowing:
- Baclofen. Ryan tolerated the last reduction on February 14th. He is on for another reduction on Tuesday that will take him from 96.1 mcg to 80 mcg (16.8% decrease). He began 2012 at 155 mcg, so the absolute reduction since the new year will be 48.4%. Since last year at this time (400 mcg), this is an 80% reduction. Also on Tuesday, his pump will be drained and refilled with a lower concentration to allow the pump to flow sufficiently enough not to stall. So even though the pump will be working faster, the amount of baclofen reaching his system will be less since it is more diluted. It is my hope that he can completely wean from baclofen altogether and the threshold he must tolerate before stopping it is 40 mcg. I envision the schedule to step-down like this: 96.1 -> 80 -> 65 -> 50 -> 35 -> 0. This means that after Tuesday’s adjustment, Ryan is a mere four reductions away.
- UTI. Ryan is several days into his fourteen day course of antibiotics to treat his latest urinary tract infection. All indications show the infection is being eradicated. We are in consultation with a urologist to find ways to lower recurrences.
- CT Scan of Abdomen and Pelvis. For those who might have missed the post from Thursday, Ryan had a scan to check the health of his bladder and kidneys. Another goal was to see if something might be causing his UTIs, like a kidney stone or disease. The scan showed Ryan’s system is healthy.
- Dexascan. On Thursday we had a dexascan performed that measures bone density. We are still waiting on the results, but I’m fairly certain what it will show. I suspect Ryan has suffered weakening to his skeletal integrity. In anticipation, we are already beginning to develop a treatment plan.
- Femur. This break healed beautifully. While we where in getting the CT scan and dexascan I had them take images of the femur to send to the orthopedic.
- Civil Case. Still in the discovery phase. I am scheduled to give a deposition in May. I can hardly wait!
- Surveillance. This topic really pisses me off! I laid out significant cash to buy a surveillance system. This money could have gone to Ryan’s care. But, no… some trouble-maker forced this upon me (see my February 9, 2012 post, Faceless Bastard: Ignoramus or Trouble-Maker?). Anyhow, the system comes with eight cameras that also capture audio. I’ll mount these to give full coverage. My goal is overlapping coverage in most, if not all, places. There will no be a single blind-spot, I promise. These cameras are effective in low-level lighting (like when Ryan is in bed). All cameras will feed into a digital video recorder (DVR) that will hold months-and-months of footage. When the disk is nearly full I’ll transfer it to a DVD library (otherwise it would begin rewriting from the oldest footage). This will be up-and-running on Monday, with uninterruptible power supply to boot. In the meantime, I’ll continue to use what I have (one camera, my computer, smartphone, etc).