It’s one of those times where a general update is probably necessary. The fact is, for the past week or so my focus was elsewhere. I owe it to you to bring myself back to base.
- Social Services. I met with a representative last Thursday morning in my home. In total, the visit lasted seventy minutes, but much of it was exploring ways that they could be an advocate for Ryan (I asked them to do this). I held Ryan up as the gold standard of care and the case worker seemed to agree (but they never really outright say). I showed everything, giving a detailed tour. We discussed how any baseless future assertions might be most efficiently dealt with. I expect to hear that the case is “unfounded” this week.
- Baclofen Reduction. Another reduction is happening today (18.1%, from 109.9 mcg to 90 mcg). Ryan began the calendar year at 155 mcg, so this means he is at a 42% reduction for 2012. Since last year at this time his dosage is reduced and incredible 77.5% (was at 400 mcg). Breaking the 100 mcg threshold is a big deal to me. I just hope he tolerates it and we can continue the march to stopping it altogether… eventually removing the pump for good.
- UTI Resolved. The urinary tract infection from January is gone. At least for now, anyhow. His urine is continuing to show the absence of leukocytes and nitrites, meaning a UTI is not present. We are still working on getting him in for a urological consult. You might be surprised at how many doctors (from across all disciplines) are not willing to take him as a patient.
- Femur. The surgery required three small incisions (from a half-inch to two-inches) to place the rod and screws. These are healing nicely. The staples were removed last Friday, allowing us to get him showering again. The only remaining action on this is to take Ryan for a follow-up visit with the orthopedic doctor.
- Patio. I’m still hoping the contractors will come back to put on some finishing touches. I’m reluctant to ask them because they did so much for us already. The Jacuzzi needs placed (it’s still in the yard) and the slope needs reduced. The grass seed never really took, so I think I’ll just buy sod when the weather gets a bit warmer.
- Bone Density/Dexascan. I’m trying to combine this in the same outing as the urologist. Some might remember we had this test done on Ryan a year ago and it showed some deterioration, but they felt it could be remedied through supplements (mainly calcium). I suspect this recovery didn’t happen and we might need to revisit ways to improve/maintain Ryan’s bone health. Adding more calcium is an option, but this makes him more susceptible to kidney stones. Perhaps the femur fracture might help in the long run, as we might not have known (until it was too late) that Ryan’s bone density is compromised.
- Comments. Someone suggested no longer allowing comments on my posts. You can read the full comment at the bottom of yesterday’s post, Judge Not?. Hell, I thought yesterday’s comments were amazing! Anyhow, there is no way I will stop this. For one, if someone doesn’t like them… well, I suppose the easiest thing to do is just not read them. Personally, I draw inspiration from them. They help me cope. They confirm my emotions. Few things motivate me more than others who share my ire. Usually, you express my thoughts better than I do! Another thing, I learn a lot from the comments. Every day you, as a group, confirm your “smarty pants” status. Although I’m no longer a religious man, I don’t mind the biblical and faith-based references. I’m not opposed to religion, I just don’t believe in it anymore. That in no way means the bible doesn’t hold valuable lessons for me. The parables apply just as much to those of no faith, just in a different context. Finally, comments allow the hateful to self-expose. They just can’t stop themselves. This, in turn, drives up readership and time spent on the website. The result is a more favorable ranking in the search engines.
- Civil Suit. It’s still in the “discovery” phase. My goal remains… to hold the “dirty half-dozen” accountable. The truth is, Ryan will likely not ever see a cent from the recovery. Any money awarded will be dealt out to others first. Sadly, the insurance company could probably claim it all, as they paid millions already. Remember, we are dealing with the scum of society in these thugs (and their families). Just getting them to pay at all is questionable. Hell, according to the Delaware Courts, Alex Woods hasn’t even paid a $121.60 traffic ticket he has. It looks like these thugs might spend their lives with liens over their heads.
So, again, thank you for listening to me. I know you tolerate my randomness when posting from day-to-day. I suppose, in some ways, it keeps this website interesting. But, I realize it might be frustrating too. My mind never really shuts off and what I write about is what I am usually thinking about when I sit down. If you find this annoying, just image being me… the person who lives it.