Normally, when I feel the need to put everything going on into a list it spans what’s coming in several days to a week. Not today, though. Today’s list is just that… a list for today.
- Baclofen Reduction. I made the decision to continue with today’s baclofen reduction, despite Ryan continuing being occasionally uncomfortable (hypersensitive might better describe him). He did well with his last reduction (two weeks ago). His discomfort, in my opinion, is tied directly to the urinary tract infection (or the exceptionally strong antibiotic to treat it). So, this morning he will be knocked down from 135 mcg to 110 mcg.
- UTI. Sue and I spent all day yesterday trying to figure out what to do next. We are concerned that the infection, although not likely, might have ascended to the kidneys. We came within a hair of admitting Ryan to the hospital (even decided where to take him, Reston Hospital), but decided to take another approach. Namely, continuing the antibiotic (Cipro) another seven days. This will buy time to get more blood work and urine cultures grown out. Meanwhile, we are bringing a urologist and infectious disease doctor into the fray.
- Dr. Hinkle. Just like almost every week, Dr. Hinkle is coming this morning to check on Ryan’s eye health. For the first time in months Ryan’s eyes look fairly good. For a while there his eyes looked like tomatoes. Thank goodness Dr. Hinkle was kind enough to stay on top of this and, despite the redness, no damage seemed to occur.
- Blood Draw and Urine. Dr. Rodriguez is sending over a nurse to draw blood and pick-up another urine sample to culture. We are running every test I can think of doing, provided Ryan’s vain stays open long enough to fill several vials. The earlier blood work was suspicious (and incomplete), so I threw it out (or discounted) the results.
- Fluid Retention. While everything above is going on, Ryan also is retaining fluid. His weight went up six pounds in just three days, recovered, and went back up again. The retention is most notable in his feet (swollen) and stomach (bloated). Dr. Rodriguez directed us to give him two doses of Furosemide, commonly called Lasix. This is used to dump unneeded fluids and salt from the kidneys into the urine. Ryan had the first dose last night and will get another before I get him up in about an hour.
- Patio. I was told last week that the crew would be back this week to put on the finishing touches. The jacuzzi will be brought back up and I think some more fill dirt to reduce the grade from the patio. My guess is this will be today.
As for me, I’m mentally and physically exhausted. If I were a celebrity, it would be cause to admit myself to the hospital (that’s a joke… sort of). Yesterday was nothing short of a mental marathon in doing research, talking to doctors, and weighing decisions.
By eleven o’clock last night my mind was fried, or so I thought. My brief periods of dozing off (yes, I still don’t sleep well) were filled with dreams replaying the previous day’s research and decisions. It was one of the rare nights I didn’t dream of Ryan being whole again.
I dreamed reality.