The ten percent reduction in baclofen, now some fourteen hours later, is not causing any noticeable problems. Ryan is tolerating it well. He had a peaceful night. I’ll be interested to see how he copes with the decrease once I get him up (in about twenty minutes) and exercising. I’ll also be watching for any positive signs of increased alertness.
It’s so exciting (for me, anyhow) that Ryan needs less and less baclofen. Remember, he began the year at a rate of 425 micrograms (mcg) of baclofen. Now he’s at 315 mcg. In the world of micrograms, this is really quite a bit since one microgram is equal to one-millionth of a gram. Baclofen is highly potent medicine, for sure.
Once a week (at a minimum), usually on Sunday evening, we test Ryan’s urine. The results can tell us a great deal about Ryan’s health. For example, we can find if he is adequately hydrated — which he always is. We can see if there is even trace amounts of blood or protein. We can check his glucose. We also can learn if he developed a urinary tract infection (UTI), which is all to common with people who use catheters.
This week’s results showed the presence of UTI , albeit extremely early in the infection cycle. So early that I bet he didn’t even feel any discomfort. I’m grateful that we are able to stop these infections from becoming acute and knock them out before they really get serious.
Ryan is now on a ten-day course of antibiotic… again.