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"I tell him I tried. I tried to keep memory alive; I tried to fight those who would forget. Neutrality helps the oppressor, never the victim. Silence encourages the tormentor, never the tormented. There is so much injustice & suffering crying out for our attention. We must take sides. We must interfere. -E.W.

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You are here: Home / News / Ryan Improving

Ryan Improving

January 28, 2019 by Ryan's Rally LLC 10 Comments

We made it through the weekend… and that’s no small feat in the hospital. The best one can hope for is for the status quo until Monday morning when it returns to full staff. Fortunately, this happened.

Ryan is up and working out this morning in his hospital room.

Some early morning labs came back and everything is moving in the right direction. I’m now able to start planning for his (eventual) discharge. I’ll become borderline obnoxious in pressing the doctors to give me a compelling reason to deny/delay discharge. That’s not to say there won’t be, but every day minute he stays in this environment exposes him to illnesses separate from his original condition. It all comes down to risk versus benefit.

To explain what I mean by “pressing”, I (essentially) ordered an IV midline to be placed today. Although seemingly a tad irked at me, the doctor (a.k.a., Hospitalist) signed off on it. [Update:] Subsequently, I learned that the kidney doctor had already ordered this, so perhaps I wasn’t as influential as my ego had thought. Eh, I’ll just pretend I was.

Once home, his recovery will continue for weeks. We already know that we’ll be administering IV antibiotics for another 10 – 14 days (hence, the midline placement) as well as periodic blood work. These kidney/bladder infections are slow to bounce back. It take months.

My spirits were lifted — more than written words can express — when I had a moment to check on the support for the documentary being produced about Ryan, called Storming: The Ryan Diviney Story. This film means everything to me and my family in our relentless pursuit to keep Ryan relevant. Your willingness to share (on social media) the documentary’s trailer inspires us. For those who haven’t watched it yet, it’s worth your while to understand the importance to us. Also, please excuse me for beating the drum to SHARE it directly from the film’s promotional website.

If you’ve already done this, do it again. Then again. And again. This campaign began trending last week and continues to this time. Please help us keep it this way. Here is the direct link: Storming: The Ryan Diviney Story.

In my borderline obnoxious way, please remember to share (from the film’s website). Unlike the medical community, I sense you won’t become a tad irked at me. Anyhow, I hope I’m able to convey to you that, despite all that is going on right now, this becomes more important to me.

You see, I fear just how many more times Ryan can continue to recover from these setbacks. My instincts tell me that time is of the essence.

Now, back to my (medical) goal for the day of getting Ryan discharged. Arriving home is, of course, the goal… but it’s not easy when we walk through our home’s door. I become obsessed with my mission to sanitize and sterilize everything. Even the dogs are not safe from my quest! First, it’s all the items that came back with us from the hospital. This includes both Ryan and me getting an antibacterial shower. I fear inadvertently bringing germs into our home. Honestly, I’m not normally a germaphobe, but hospitals give me the heebie-jeebies.

I can practically see those microscopic bastards crawling around everywhere I look.

It might not be right away but I’ll be sure to let you know within a day when he gets home. Please be sure to check back for updates. In the meantime, I again want to let you know how deeply touched we are that you — and people like you — continue to love and care for Ryan.

We need you. For Ryan’s sake.

UPDATE! Ryan is cleared for discharge later today. Unless something unexpected crops up, we’ll be home by tonight!

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Filed Under: News

Comments

  1. Michele Brandt says

    April 2, 2019 at 10:51 AM

    Just checking in on ya’ll. How’s Ryan doing?

    Reply
    • Lauren Ridgway says

      May 2, 2019 at 1:48 PM

      Indeed – it’s been months! How’s Ryan now? Is there somewhere else we should be reading?

      Reply
  2. Ali Thompson says

    January 28, 2019 at 6:36 PM

    Thinking of & praying for you all from my hospital room as I recover from pneumonia. I too plan to sanitize as soon as I get home as my Dad is a germaphobe!

    All my best,
    Ali Thompson

    Reply
    • Ryan's Rally LLC says

      January 29, 2019 at 12:44 PM

      Ali, I’m saddened to hear you’re ill. Keep your sights set on returning home.

      Reply
  3. Gail says

    January 28, 2019 at 5:48 PM

    So glad Ryan is going home later I know you’ll be so worn out making every thing sterile ,I hope you all get some rest. SHSP NGA ❤️

    Reply
  4. Susan says

    January 28, 2019 at 1:34 PM

    Prayers for a smooth transition from hospital to home. Prayers for your strength to get everything “cleaned up” and a few moments of peace this evening after an exhausting day!

    Reply
  5. Paula says

    January 28, 2019 at 1:12 PM

    So happy that Ryan can get out of the hospital today, Ken!! I chalk it up to your meticulous care of him. Also thank you for the reminder to share the link for Ryan’s documentary. Keep it up, we need these reminders to stay on point in our quest to help make this film happen. Ryan deserves no less. Sending love and hugs, lifting up you and your family in prayer.

    Reply
  6. Jaimi says

    January 28, 2019 at 12:25 PM

    Thanking God for a clear weekend and DC orders today!! You take such amazing care of your son…..a beautiful young man. 🙂

    Reply
  7. Susan Boyer Newberry says

    January 28, 2019 at 12:19 PM

    Hugs and Prayers for your successful journey home GERM FREE! with no setbacks!!

    Reply
  8. Tammy Henry says

    January 28, 2019 at 12:16 PM

    Wishing, hoping and praying for all the best for Ryan and his family! Everyone should have a health care advocate as devoted as you! Always in my prayers!

    Reply

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