I posted this to Ryan’s Facebook Fan Page yesterday. It’s so important to me that I get this message out that I decided to publish it to the website.
>>>Please share — and “like” — this post to help me reach as many as possible with my sincere and unending appreciation. Please! <<<
Thank you to all those who give financially to Ryan in so many ways. These contributions are used exclusively for his care, comfort, recovery & treatment… when insurance doesn’t and only when absolutely necessary.
I’m happy to tell you how much it helped him today! I also want you to see how we use your generous gifts. I promise you — as I have in the past — I am committed to being the best financial stewart for BOTH Ryan and you!
We needed to redeem a significant amount ($889.99, to include taxes & shipping) of Ryan’s Amazon Gift Cards to purchase a replacement for critically necessary equipment.
A Vital Signs Monitor!
Like the one that just died, It will be used continuously each night (and routinely for spot checking during the day). I set audible alarms to alert me — as I try my best to get some sleep — if Ryan’s vitals are concerning. When I suspect something might be affecting him then it is used 24 hours.
Since Ryan isn’t able to communicate, this is the single most important piece of equipment for me to assess his overall health.
Remember, just 2 months, how it confirmed to me that my instincts of Ryan being “a bit off” added reason for me to order blood work? These lab results got us ahead of his multiple kidney stones — before he even began becoming symptomatic (fever, pain, dark urine). It was key to having him in the hospital DAYS before they could even diagnose a problem (and the blocking his urine flow).
I’m so thankful for the pain and certain complications he avoided!
Keeping Ryan in pristine physical condition takes input from every source at my disposal, including my “clinical observations”. I use any way, and every way, to get the total picture of his health and comfort.
This equipment is critical to his ongoing well-being. Thank you so much for providing him such amazing care! Words just can’t describe how grateful we are for you loving my son to this magnitude.
He needs you… We need you… more than I could ever express. Thank you, thank you, thank you!!! Please don’t ever leave him, be it financially, yes, but also in your thoughts.
We cannot do it without you! Please share this post to help me reach as many as possible with my sincere and unending appreciation. Please!
Related articles
The honor is ours…
Always praying for your precious boy, Ryan.
Always willing each of you our most positive energies for his healing and yours.
THANK YOU!!
With love and in prayer,
Keri and MY C.F. FRANKIE and Family
always praying and there for Ryan and your Family <3
There was a day last week when throughout the day I saw three or four young men who looked just like Ryan (not quite as handsome of course but the resemblance was there!). I started pointing them out to my kids, “Hey did you just see that guy?!” The truth is, Ryan is always in my heart, Ken, and so is your family. Thoughts of Ryan put hope in my heart and happiness in my spirit. He is one fine young man.
Sending you love, hugs, good thoughts and prayers – and also my thanks for always keeping us updated even when I know you have barely slept or eaten or anything else. It means a lot!!!
Blessings,
Paula
I think about your family everyday, have been following for a long time, so tragic, but I have hope 🙂
That is a great idea, Rita! Ken, we love Ryan as if he were our own child. Leaving is not an option. He is our heart. That also of course includes you, Sue and Kari! Much love~
I was just thinking.. Would it be possible to have a few Ryan’s Rally billboards in the NYC area appealing to Yankees fans? I’m sure that many would want to donate if they were aware of his story.
So sad what Happen to your Brother God Bless him and your family ..
Ken, I don’t know how you do it. I suppose love makes all things possible. To slightly update a Perry Como song from perhaps 60 years ago, “I have seen a parent at prayer, so I’m sure of the meaning of LOVE. I have seen and heard these things so now I know what God is.” (If you blinked, you missed the song! Guess we weren’t in the mood for schmaltz like that ca 1955. It was later rereleased as the B side of, incongruously enough, What Did Delaware!” (Ask your parents, Ken! Perry Como is years before your time, Ken! 🙂
It’s a disgrace that you have to pay for all this. We have money for the damndest things in this country. we have spent God knows how many trillions of $$ on one misguided war after another. I was in one of them, Vietnam. My brother in law was in another, Korea. My dad was a World War II Vet which was necessary.) We have built enough nuclear weapons to destroy the world 12 times over, kill every man, woman, child on this planet 3 times over. But we cant find the money to assist people w/catastrophic medical/rehabilitation expenses. Crazy…. I was just reading an article in Huffington Post about a man who makes specialized all-terrain wheelchairs. Because they have special motors, the FDA classifies them as All Terrain Vehicles & won’t pay for them. He provides them at cost to severely disabled folks, providing them with independence. No insurance, no government red tape…
Does your state have some sort of Victims Compensation Board? Look into it & see if they can help. I cant give you a donation. I’m on a fixed income, I myself have significant medical expenses. I’m still left w/costly out of pocket expenses post Medicare & Medigap. If Tim’s insurance covered me, the cost would go up almost 100%. He’s preparing for his annual residency at the Paris Conservatoire. They eventually reimburse him for the flight etc., but he has to make the initial outlay. The cost of Tim’s side trip to visit his sister in their family village in Wales is a big DADT. But you do have my prayers and that’s more important than money. God bless & keep you all in His care.
Absolutely, Ken, I will be here in prayers, thoughts love and financially as I am able, until my last breath (or Alzheimers, whichever gets me first). You are my family, though we have never met. SHSP NGA, My love all the way to the moon and back, Annie