Update, January 17, 2014:
My original post took an unexpected turn to the nastier side… in the Comment section. Really, all I was asking for was help in explaining how I might rig a “Care Display” for facilitating any care giver — including me — in executing tasks. That’s all! The knowledge many shared make this possible for exactly zero dollars, as I expected. I will work on it this weekend or next. It’s not the type of post that should upset anyone.
Or, so I thought.
You can read the original post by clicking on the button (below), but it’s not really necessary. Nope, not at all. What is worth reading is the comments!
This project is one that I put off for a long time. I suspected there is package software that might carry out what is needed, even PowerPoint might be enough, but I couldn’t find any (and I’m only adequate on PowerPoint).
Basically, I’d like to use the television in Ryan’s room to display reminders throughout the day and night. So, for example, if Ryan has scheduled eye care at two o’clock in the morning then a message (and gentle tone) would flash up on the screen at that time.
It might look something like above image on any given day. Many reminders would seldom change from day-to-day, but it would still need easily updated or modified.
I’m a huge Apple fan (because of Ryan), but we have an older, unused PC laptop (running Windows) that can be dedicated to this project. It has Microsoft Office on it in case one of these applications will do the trick.
If this is something you can do and would like to volunteer to make happen then just shoot me an email by filling out the contact form below or emailing me at Kdiviney@ryansrally.org.
[contact-form subject='[Ryan%26#039;s Rally: Tech Project’][contact-field label=’Name’ type=’name’ required=’1’/][contact-field label=’Email’ type=’email’ required=’1’/][contact-field label=’Comment’ type=’textarea’ required=’1’/][contact-field label=’Your Website (optional)’ type=’url’/][/contact-form]Related articles
Ken I haven’t been a follower long but i pray for u and ur family everyday and i pray that one day soon Ryan can get better and be as close to his old self as possible. Keep up the good work and i wish only the best for him.
In my opinion…God does have him. That’s why he is still here. Prayers to the family
Marcie Parsons is ignorant to say the least. I hope to God she doesn’t have children. She must be a miserable person inside. Her stupid opinion means nothing here. Her replies were idiotic and she can’t even spell cruel correctly. Pray for her pathetic soul. And yes Marcie you are pathetic. A laughing stock of this thread. Keep your stupid opinion off this precious young man’s page.
Marcie, sadly for our society you are wrong!
We all need to be reminded of Ryan Diviney every single day.
We need to be reminded that Jonathan May sucker punched Ryan and his friend Brian. Austin Vanterase kicked Ryan in the head as he was down on the ground out cold from Jon Mays’ punch. There were others present who watched.
Reminders allow conversations to be started with our children as to how to behave, how to choose friends, how to speak up, stand up and be the voice against evil and wrong doing. Too many times society stands by as others are victimized and bullied. Just think if the passengers on the airplane in Pennsylvania on September 11th would have just “stood by and watched” another airplane would have crashed in Washington, DC. Thankfully, those men were made of the right stuff and did not stand by and watch, they couldn’t save themselves, but they saved maybe hundreds of others. They are heroes.
Ryan is a reminder that evil exists among us. Until parents and families change acceptance of the type of criminal behavior that put Ryan in his present state we should be reminded every single day. Our children deserve better. Ryan deserved better.
I had the honor of visiting with both Ryan and Ken the other day. It’s been way too long but I have to say that I am truly amazed at how Ryan looks. I have a very strong and solid reference point, I would estimate that it has been almost an entire year since I’ve last seen them. The first thing that struck me was Ryan’s color. His skin had an incredibly healthy glow and he no longer had a pale countenance. The second thing that was clear was that he was more active. I don’t say this lightly. I’ve visited with Ryan before and have seen him in a resting state occasionally moving but not quite “responding.” He was (and forgive me Ken if this is out of line), or at least seemed to be “complaining” a bit when Ken hooked him up for some exercise therapy. I saw precise moments when things were changed in his environment or when his father spoke to him and he responded to that stimuli. I’m no neurologist but hell…I’m human and we are all connected. You keep doing the right thing Ken because he has come a long way, a very long way and you and Sue are behind that. You are the true model of respect and love.
Holy cow. The thread is insane. What a jackwad that lady is! Thank you for banning her and getting rid of such a horrible distraction (and waste of oxygen!)!!!
That one is! Hope Heartless rides off on her broomstick to some far off place where nothing lives that she can hurt!
Ken, that lady is despicable for making those cruel comments, she should be ashamed of her herself! Listen to me when I say that you have such love and support from people, you do not need a negative force in your life! I look forward to reading about Ryan’s updates! I would like to friend request her and than blast the hell out of her for being so cruel, but I won’t, it is clearly not worth it! Keep on posting!! God Bless team Diviney!!
Let’s take the focus off of this Marcie and put it back where it belongs, on Ryan…
He is the reason I visit this site and subscribe to the blogs, not to waste attention on haters…
So, how is he doing today Ken?
People this is the exact reaction this Marcy character wanted … stop instead of complaining about her pray for her . She doesn’t get the bigger picture
Marcie you are a monster. Your words mean nothing to anyone. Unfollow the page and move the hell on.
Have you been with Ryan? Have you met his family? I had the privilege of caring for him in the family home. Ryan perceives his surroundings, has responses and you can’help but feel love when you are with him. His family is amazing in his care with Ken doing everything in his power. Each person has the right to make a decision that is,right for their family. I have only respect for the Diveny family and am happy to see each small step Ryan makes. We each have to live with ourselves and life is so much better when you try to see the positive. I hope and pray none of you face a tragedy of its proportion.
Thanks for blocking her. I wonder if some of the other posters are correct in their thinking–that this person is a ‘plant’ just to rattle your chain….mmm….just think, that time spent trying to rattle you could have instead been spent helping someone, somewhere………just a thought.
I think someone needs ” to pull the plug” on her… Just sayin,,:)
I don’t believe in God, but I do believe in where there is life, there is hope. What a truly amazing family this guy has got around him. They strength and character they have should, the easiest thing in life is to quit. They have not, they have not quit on their son or sibling.
True admiration for what these people have and will continue given to him.
HOPE IN YOU AND HIM.
Haters gonna hate. Jeremiah 29:11. My hope is in Him! You know you are always in my prayers.
MEAN PEOPLE SUCK! Don’t let Marice take the wind out of your sails. I just sent you an email with a couple of ideas to help with your “techie project”.
I believe she is either friend or family of the monsters that did this to Ryan.
I do too, Sara.
I thought the same thing Sara.
That comment from “marcie” was so outrageous, that I have to wonder if she is a real person or not. Maybe a fake profile created by a friend of a certain family, posting here to make trouble? Sorry to be so suspicious, but it was such a disgusting comment !! Keep up the great work with Ryan, and I just wish there weren’t so many jackasses in this world.
Yes Marcie. If you don’t like this site GET OFF IT!!!! This Family does not need to read stupid stuff from a stupid/heartless person. What if it was your family member? Ryan is doing better day to day. When you don’t no facts don’t speak you’re stupid thoughts u can also UN-INVITE your self or just keep scrolling. I wish NOTHING bad on people but you may be an exception. Keep up the good work Ryan.
WOW! Just WOW! I am sickened by people! Please know, she was wrong in claiming she was saying what everyone was thinking…..NO ONE thinks that way! We all have nothing but prayers and good thoughts for you and your family! It breaks my heart to think that you would have to log on and read that garbage! so cruel and hurtful! If she were ever in your situation, it is apparent, she would have NO clue what to do…..heartless and clueless….she must not have children…WOW! I am still in shock!! Also, she apparently hasnt done her homework on Ryan, at all! People should learn facts before making and speaking an opinion….What has this world come to? …..Praying everyday for you! Ryan has awesome parents! dont EVER doubt that!!!
I pray that the family can ignore the negative comments. My prayers go out for you all. Don’t question what you are doing at all. Miracles happen every day! God bless you!
God bless all of you. May your guardian angels shine down on you.
That is appalling!! Ignore the hate. There are way more positive posts than ignorant, negative ones. You guys are a wonderful family and I respect how well you take care of Ryan and value his life. His life is worth it all. Don’t let mean people take away the value of Ryan and your family!
Not only an ignorant person, but a coward as well. People tend to “say” things behind a screen that they wouldn’t have the guts to say it to someone’s face. If someone ever did say that to Ken’s face, although one might want to lash back, I would hope there is some flippant comment that would put that person in their place. I’m glad you can ban her because those people just need to get a life.
Ken, you continue to be a man of integrity. Ryan would be proud.
I am so sorry you had to read that stuff, Ken– these morons do exist, sadly….
Hi “Marcie!!!” How are you? Cuz I sure know you’re reading this. Oh, Marcie, what can we say. You came here to be your sad silly self, hoping to upset people and I suppose you succeeded a little. Not really, Marcie. Nah — because here’s the thing. It’s obvious you can’t help yourself. You have a problem and I’m sure you work hard to try and address it, but you just can’t. OH well. There are worse things than being intellectually marginalized — I’m sure you just can’t help it. But keep trying. It might take you a couple of decades but never give up hope. Just when you think you’re ahead of the game, someone named “Marcie” will remind you of who and what you are — if you weren’t so sad and silly, I might feel sorry for you.
It doesn’t matter where your mind is when you start reading this because after the first sentence your mind feels like it could explode with anger! So sad that any human could think like this and actually share it as a comment!!
Mr. Diviney all I can say is it’s unfortunate that someone would say something like that bit it doesn’t suprise me. Marcie probably has no friends, very little family and is a miserable human being. Don’t let one comment stop you and your family from the ultimate goal. For every Marcie there are thousands of others that support your cause.
Ken, she is obviously a very ignorant person. I wouldn’t give another thought to her. Prayers for you and your family!
I couldn’t believe the nasty filth that came out of that Marcie’s post. What a terrible person. I am shocked and appalled by her comments. Ken, you are doing such a great job taking care of Ryan! Don’t let anyone tell you different. I am so sorry that you were subjected to that awful post.
Ken do not pay attention to hurtful comments. The woman is an ignorant jackass. We all know that Ryan is very much alive and relevant. Keep up the excellent work u do. Again, we have your back.
So sad!
Some people still amaze me with the stupidity that comes from behind a computer. She must have never has to deal with tragedy or she just is not completely human. So if you are breathing on your own you should now be killed well then shouldn’t anyone breathing be killed. I mean that is basically what she is saying. As a mother I would do the same as this family has to make sure that Ryan has the best possible life. Then again I am human. I guess if Ryan was not breathing on his own he would have the right to live. Wrong breathing on his own or by machine he has as much right to live as anyone else. I hope that when Ryan Wales up he finds this lady and shakes her hand and tells her thanks for not believing when so many others did. Look at me now. Keep the strength that your family does and tell her to kindly kiss off. Much love and prayers sent your way.
Oh man that lady need to chill out…Mr. Diviney I hope someone is able to help I’ll ask a couple of people to give it a read and see I they can help we keep Ryan in our prayers and don’t mind some opinions I guess she’s not thankful enough for been up and being able to enjoy the simple thing in life! 🙂 keep it up #teamDiviney
Wow! People never cease to amaze me. My wife and I watched our son die almost five years ago after he was hit by a car waiting for help after a flat tire going back to WVU. Even though he never regained consciousness we where with him all the time, just as Ken and his family are. You never can tell what that person might hear, feel, experience,etc. even though they can’t communicate with us. I am in complete awe and amazement of what Ken and family have done for Ryan all this time, because we too could have been in that same situation. I applaud you and keep your head up and continue your great work because you never ever know what each day may bring! God Bless and you are ALWAYS in our prayers!
I am so sorry for the loss of your son! God bless you!
Ken-
I am sorry you had to endure comments from the heartless and ignorant. She is obviously not a parent and certainly has never been faced with the decisions/life we have been faced with. Keep up the fight. You have smart and heartful people in your corner.
MUCH LOVE
“The first time someone shows you who they are, believe them.” Adios, Ms. Parsons. Love the program idea for Ryan. Hope someone is able to get you set up.
I feel sorry for ignorant people. I love your love for Ryan, and I know in your shoes I would do exactly as you have done. You’re an amazing example of strength.
I am sickened by this persons comments. How evil and heartless and ignorant can someone be!! My heart aches for Ryan and Family for having to endure such cruelty.
God bless you, Ken. I admire your tenacity and dedication to Ryan.
I can’t believe the nerve of some people.
Yeah i was wondering the same thing when she said let god have him, are you suppose to starve him to death? As you said put a pillow over his face?? Let an infection take over his body and just ignore it until it takes his life?? I guess she is not used to being around people with disabilities. Ryan is in no way on any machine to help him live, and the only way to let God have ryan would be considered against the law and land you in jail. And he does have eyes they are just being hidden behind his eyelids as to not be damaged further due to i am thinking lack of blinking and if i am wrong i am sorry. I didn’t know that blind people should not be allowed to live, poor Marcie. I am glad that she hasnt had to deal with anything like this because if she had then she would be a bit more understanding.
Pay no attention to the comments of mentally unstable or spiritually bereft people, especially those who happen to be profoundly ignorant as well. Poor Marcie..
Sorry you have to read such awful things, Ken
Ryan is most relevant and you are doing amazing things
and definitely hope you get
project worked out. Work be a big help
Always hereGail
I’m not sure who invited Marcie Parsons to this page, but they might want to reconsider their association with her. I’ve only done this before with two others over 4 years… I banned her from this FB Fan page. I’m sorry this happens from time-to-time and you are exposed to it, but hopefully it gives you an appreciation for some of the downright extreme (and hurtful) opinions. Besides, what does she propose I do to “let God have him”… hold a pillow over Ryan’s face until he suffocates?
Thanks for banning her.. She is a heartless human being.
Handled with such class, Ken! Wouldn’t expect anything less. Ryan looked absolutely incredible on Sunday and to be infection free for a year is incredible. Keep up your astonishing work and always stay positive. I look forward to the arrival of the lift for the hot tub. Ryan is going to love the hot tub partayyy! 🙂
I am not convinced she even bothered to read Ryan’s story. She obviously didn’t care. I pray for you guys all the time. Hope you find the help you need. 🙂
Hope you get someone to help,Ken.Sounds real good
OMG Marcie Parsons,
What a cruel, cruel person you are in your thoughts and words about Ryan.
Please stay away from Ryans page .He is getting better and better and has a wonderfully loving family and many,many friends here to encourage him
Have a good day Ryan and all
Love Gail
You should be ashamed of yourself, Marcie Parson. Do you really think by saying something like this is helpful? How hurtful…you have noooo idea what they have gone through and are going through. You may feel that way, but keep your hurtful opinions to yourself.
Blessings to the Ryan and his family.
Tristen Rizer….
Keep on reading…your the ignorant one must i add…poor thang….realization of the fact….THIS IS FB…NOT BEGGERS CORNER
I understand this is Facebook and I have NEVER seen Ryans family use it as “beggers corner”. They ask for NOTHING. And in this particular blog they are asking for KNOWLEDGE. Someone guide them in setting up the new daily calendar of care for Ryan. They didn’t ask for you, or anyone else, to buy them anything. Yes, they have the option for people to DONATE to Ryans Ralley. Donate means you can give or not – the choice is open to each individual. I will keep on reading, thank you! 🙂 Maybe you should choose to read a book on grammar instead of this blog. I am by no means an English teacher but I know the difference between their, they are, and they’re. I also know how to spell “thing”, use periods, and know what both “your” and “you’re” mean. Please be more.consoderate of your psots in the future. If you have nothing nice to.say please sat nothing. 🙂 Oh, and one more thing. You speak of God but you might want to get to know him better! 🙂
When your considerd a vegetable….what more do u need medical professionals to say….theyre choice…just as i have a choice….so go ahead…call me whatcha want…i will be all that n then some…i owne it baby!!@ my opinion….it counts
No, actually….your opinion means absolutely NOTHING here…..doesnt count….
Your grammar and spelling are atrocious, Ms. Parsons. Your opinion doesn’t equal a hill of beans. You are ignorant for making such cruel comments to this family. Did your mother never teach you that if you don’t have anything nice or positive to say, you should keep your big, fat mouth shut? You should be ashamed of yourself.
So which of the monsters that did this to Ryan are you related to? That would seem to be the only reason that someone would say something to cruel. Both of them should thank his parents every minute of their miserable lives that they aren’t in prison for murder, because had his parents made a different choice, that’s where they would be. So who are you, mom, Aunt, Girlfriend…….?
You are an idiot, Marcia! Instead of using your time to attack a family that has been through unimaginable pain, maybe you should go educate yourself. Learn how to spell! Learn how to use proper punctuation! Maybe go to church! I’m so disgusted! God bless you Ryan!
I will not…some how or another i was invited to this page…not really knowing the circumstances i excepted the invite…upon reading his rally i realized that life should be as we know functional beings should live…not in pain and suffering…its my opinion…not being rude or crule…just stating what so many others think well…u post it to the public…be ready to deal with it since your such strong people here…go figure!! God bless and carry on with how im such a bad person…bye bye now….bless his heart. *ryan*
Ma’am I’m not going to call you names but say this, it really bothers me when people make comments like yours about not wanting to be reminded of this, its not like you are forced to read the blog, the facebook page or anything else. You have a option to not read it, and you also have a option not to be hurtful with your words, when a loved one is like this you hold to every shred of hope, and to tear that down because you *don’t want to be reminded* is wrong. Wouldn’t it have served better to just take yourself off these pages and let these people be? The words you say cannot be taken back, nor can there affect. Its like trying to put toothpaste back in the tube, you can’t, so please think about what you say and how it affects those involved before making comments that need not even be made.
Marcie, you say God in your conversations, do you know him?
WoW!!! Marcie Parsons I really hope you never experience something like the tragedy Ryan and his family have. Ryan is very much alive and well under the circumstances. His family isn’t keeping him on life support or anything like that. He is alive on his own. They are taking all measures to improve his current quality of life. This means they are helping improve his comfort and helping.him learn new things all the time. If you read their stories you will know that Ryan can taste foods, he can (in his own way) communicate sometimes, he even has a pet cat that stimulates him mentally but just being around him and interacting with him. To “let him go” or “let got take him” would equal murder since he is alive and living without extreme measures (life support). RYAN IS ALIVE!! I can, as I have followed his progress and story, see the progress and see his personality shine! I can only imagine the feeling his family gets from his progress! He has a wonderful, loving, dedicated, hard working family. They put themselves aside to care for their son and brother. They deserve nothing but support and positive words of encouragement. You, Ms. Parsons, are rude and inconsiderate. Please remove yourself from their page and keep your ignorant comments to yourself.
OMG serious Ms. Parsons? Where there is life, there is always hope. Do you not realize that this is a family whose hearts are aching? How can you tell Ken and the family to let Ryan go and stop begging for gadgets. That is really a cruel thing to say. I’m sorry but please please refrain from causing any further agony to this family. Ryan is in pristine physical condition and I, for one, am praying that by some miracle he wakes up. Geez. That is really the ultimate in cruelty. Sorry.
Could you check WVU for student interested in helping.
Enough already…..let him go!!! His quality of life isnt that of something we want reminded of all the time…its sad but hes never gonna get better…for crying outloud he dosent have eyes….just let god have him…stop begging for unecessary high tech gadgets….go away and look at the big pictureeeeeee……
I went back and forth about whether or not to reply to you. I just can’t keep my thoughts in today. You don’t have to follow the posts anymore if you don’t want to be “reminded” all the time. Just click a simple button to stop following. You have a right to your opinion, however, you do not know what is best and you don’t know God’s plan either. You have no right to judge this family or their decisions. People like you infuriate me with your self-righteous posts from behind a computer screen. Have you actually done anything to help or do you just form opinions about their lives and add heartless posts to Facebook?
Even if I felt this way, I have been fortunate enough to learn that there is a “proper” way to say any and every thing. My way might not be someone else’s way. I won’t pretend to know what the Diviney family is going through. But if you don’t agree, why not find something else to do with your time. Scroll past. Go to a different page. Your comment and the way you have phrased it just seems so unnecessary to me.
Ms Parsons, if only the good Lord would take you away that would be a real blessing to all of humanity, you serve no purpose in this world as shown by your ignorant comment.
Your sick Marcie! If you don’t want to be reminded of the tragedy this family goes through daily then don’t look! I would prefer to not have to read your disquisting comments. May God be with you lady & help u find your soul! Hope you never meet the same fate, I wonder if it were you or your child if you’d feel the same!!!!!!
Not that you deserve an intelligent reply, but there are hundreds of thousands of us who vehemently disagree with you, and millions who follow Ryan’s Rally: We Got This.
This blog is to support Ryan, so just bug off. You are not welcome here!
Marcie,
I will later regret taking the time out of my day to address someone like you. As far as I’m concerned, you are the reason why I constantly wonder why bad things happen to such incredible people like Ryan and don’t happen to people like you. However, since I have a soul and a heart which clearly you lack, I wouldn’t wish the Divineys tragedy even on a monster such as yourself. I will say this, though – you are more than cruel, you disgust me.
Wow. Marcie, aren’t you rich? Does hurling insults and hateful comments behind the anonymity of a computer screen make you feel better about yourself? I pray you never have to experience what the Divineys face 24/7, 365. And I pray that one day you’ll have a more charitable heart.
With that said, stay strong, Ken, Sue, Kari & Ryan. We have your backs!!!! <3 carla & family
PS: Ten bucks says the IP address from this bitty has direct links to the northeast.
Ok so like Amanda I went back and forth on if I should comment or not .. u are always going to have those with opinions .. via good or bad . When u put yourself out there the way u do ( which isn’t a bad thing ) u r going to have to brace urself for good and bad ..Marcy I do feel that u quite clearly have never been in a situation that they r in .. and if u were u r thinking would b different .. Ryan is still a so
n he is still a brother and he is still here….. miracles happen everyday but to make a miracle happen u have to be a believer …. God has a plan for everyone and who are u to tell a family to let go already …… r u god? Do u make the final decision. If so please heal me from my sins as well as your own …
Mrs Parsons, I’m sorry but I just can’t let this go, how dare you! NO ONE is making you read the blog, it is don’t by your own choosing, if you don’t like it, don’t read it, but for you to make a comment like you did is just plain awful!!! God forbid what happened to Ryan happened to someone you love, you would do everything you could do to help. What Ryan’s family is doing for him I think is amazing!!!
God bless you, Diviney family!!!
Just re-reading these comments, and I have to respectfully disagree. I don’t believe for one minute that “Marcie” would do the same thing for a family member. She would never do everything she could to help. People that make comments like hers are selfish deep in their heart, and would be the type to tell the doctors to “just let him go” at the beginning. She would never give her life to care for a loved one the way Ken and Sue and Kari have.
We love you Ryan your family loves you if you don’t have anything nice. To post then don’t. No one is making you read these posts. My heart goes out to the divinity family