Like every week, we have a lot going on. I decided to pick the top three as this week’s update.
- Monthly Donations. Earlier this week I put out a plea for people to consider donating on a monthly basis. Thank you, everyone, who pitched-in. The amount exactly doubled, from $185 to $370. Brain injury is so expensive, and the costs just keep coming. It’s relentless and always will be so. Contributions mean everything in keeping Ryan’s care and treatment going.
- Johns Hopkins. We’re taking Ryan to Johns Hopkins (Baltimore) one day next week. The main concern is with the Celect IVC filter, that has punctured the vein (inferior vena cava) and is dangerously close to his bile. The hope is it can be retrieved, but the risk might be too great. So, we are getting second opinion from another vascular doctor. While there, we scheduled a full day of tests and procedures. This includes: brain MRI, platelet function test, and corneal doctor consult. We’re also trying to get in to see a urologist.
- Eyes. Ryan’s right eye picked-up a bit more scarring on the cornea. If there’s anything positive about this is it’s not in his field of vision (if vision exists for him). Since he never closes his eyes, this scarring is always a concern. To help prevent it, we must now put eye ointments/gels in every hour.
Ken, I am in Baltimore this week and would love to come see you and Ryan at Hopkins and help you pass the time the only day I am committed is Monday. Let me know. Thanks
The Colangelis says
Did not know Ryan does not close eyes when resting at night. We pray the ointment does the job. Thank you for keeping us informed. God bless you.
No, they are always open. This is why there’s always eye ointment being requested on the Wish List. Keeping the lubricated is never-ending.
Tom McLhinney says
Sorry Ken, I did not receive the text. I will check to see if Brian got it.
Sent you an email.
Praying for a smooth trip to Hopkins and a productive day there. I’m glad you have some good friends who will come over and hang out with you. Isn’t it great to have neighbors and friends who always have you and your family’s back? Lots of us keep an eye on your house — very discreetly of course, but we’re always looking out for you. Ashburn is such a great community, I love the way people notice what’s going on and let you know if something is amiss. One time a person was on our back doorstep trying to get in. A neighbor boy was watching from his window next door and texted my son who was the only one home at the time. My son contacted me and I took care of the situation. Yes I can say this about our community, we are there for each other
Love, hugs and keeping the prayers coming!
Rita Caporicci Hoop via Facebook says
So overwhelming… Praying over everything and for some much-needed relief soon <3
Tom McLhinney says
Ken, If you let us know what day you and Ryan will be at Hopkins I along with Brian would love to come and help you pass some time. It would be our pleasure to catch up and talk. If there is anything that you need us for, please don’t hesitate to ask.
I sent you a text with the information. Please let me know if you received it.
Gail Doyle says
Ken,Good news about monthly donations. May they continue to rise:) Anxious to hear what Drs,say at Johns Hopkins and praying all goes well with filter( whatever they decide)Always wishing all the BEST for Ryan. A peaceful day to all Love Gail