Okay. I’m buckled in for what will be both a busy and exciting day. It’s jam-packed with activities from start to finish. I am so happy that Ryan had a restful night ahead of all this. He’ll certainly need it.
<via http://wholetheatre.org>
The day already began hours ago with Ryan getting his hyperbaric oxygen treatment (HBOT). Dr. Hinkle, a.k.a. the nicest man in the world, will be arriving shortly to check Ryan’s eyes. Then it’s on to therapies. My plan is to keep the same intensity, but build in a couple of extra hours to let Ryan rest this afternoon. The only hitch is the IV line is getting switched out today and it’s happening — you guessed it — this afternoon. So I’ll just need to roll with it to find the best period for some down time.
Even given the best use of time I see no way that Ryan will be in bed for the night before eleven o’clock. With IBRF coming late this afternoon (or early evening) I’ll need to push back tonight’s ninety minute HBOT session. You know, now that I think about it, we could be looking at after midnight to wrap it all up.
Eighteen hour days are not uncommon for me. Fact is, they’re typical. Still, this isn’t usually the case for Ryan. I like to keep him around sixteen hours out-of-bed, working in regular breaks throughout the day (after mid-day). My concern is he will be agitated tonight from over-stimulation, but I suppose there’s just as good a chance he will be so exhausted that he’ll just rest soundly.
Ken, Go for it!!! The day will be BUSY ,but know Ryan will get through it and you too.
My bets on Ryan sleeping soundly tonight. Surely he’ll be exhauated. What a workout this guy gets. Keep it up!
Ken, What a day!!! But know you and Ryan will get through it.Just letting you know my thoughts and prayers are with you and hoping all goes well.Tell Ryan hello and he’ll do good .Thanks for keeping us updated …So concerned for Ryan. love Gail
Sounds like a plan, as my friend always says about busy days. At least it has stopped raining and the sun is out so if you have to be inside at least you are not looking out at clouds and rain. Here’s to some sunshine for you today. Always thinking of you!
Hi Ken,
Not sure when you’ll even get a chance to read these messages, but just know that we’re all here sending positive thoughts, good energy, lots of prayers and lots of love. Ryan is made of the right stuff, and one thing we can all count on is that he will work his hardest and do his best — and that’s not all — he’ll keep doing it through thick and thin, just like you.
God bless you Ken for being such a wonderful father to your children. Keeping you all in my heart and on my mind…and in my prayers throughout the day.
Love, hugs, keep on keepin’ on, keep the faith!
Paula
I get exhausted just reading what will be going on today. My prayers are there for all of you.
You got this Ryan and Ken!!!!
Now we are getting some momentum. I feel good about today, got a feelin…
You are definitely in the 70 mph zone today. Godspeed, but don’t exceed!
We’re running with you today, Ken — all of us here at Ryan’s Rally are with you in thought and spirit. Ryan is going to shine as he moves through all the tests/exercises with the IBRF. We will be right here waiting… …
Love and prayers today and always.
You and Ryan amaze me everyday Ken! Keep up the good work. Still here and always praying.