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You are here: Home / News / Keep Searching or Die Trying

Keep Searching or Die Trying

May 5, 2012 by Ryan's Rally LLC 14 Comments

I’m just not convinced the antibiotic for Ryan’s latest urinary tract infection is doing the job. Either that or he has developed another one of a different strain that isn’t sensitive to what he’s on now. His urine still has a slightly foul odor and there’s no mistaking the leukocytes and nitrites lighting up the dip stick. So, this morning another urine sample is going out for culture. The hope is we’ll hear something back on it Monday. Tuesday, at the latest. 

<http://starwars.wikia.com/wiki/Or_Die_Trying>

Like the UTI bacteria before, this is a particularly nasty one, albeit an entirely different strain. My fear is Ryan will need intravenous antibiotics to resolve it. This is huge… in a bad way. It means we are now into some downright powerful medication. This also means he is at the threshold of resistance. Next week we’ll circle back again with the urologist and (potentially) draw in an infectious disease specialist.

How does this keep happening with a different bacterial infection each time?

I am doing everything I can research to prevent it from happening. I read every piece of literature sent to me. I’m to the point where I’m almost willing to draw a chalk circle around him and chant incantations. With all the physical victories Ryan achieved, it’s a UTI that could bring him down. A son-of-a-bitchin’ microscopic germ. It’s just not fair. What else can I say?

Here’s the thing though. I must keep searching or (Ryan will) die trying.

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Filed Under: News

Comments

  1. The Colangelis says

    May 6, 2012 at 12:29 AM

    Will offer a special prayer in Church tommorrow for God to help you. We need His help to rid Ryan of the UTI. I’m praying that Ryan will be OK.

    Reply
  2. Jo says

    May 5, 2012 at 10:12 PM

    I hope you hit on the antibiotic that is effective, Ken, but know you won’t hesitate going for the intravenous if necessary.

    Spent some time this morning on the internet reading about UTIs in people with TBI. Didn’t find anything helpful and didn’t like most of what I read. It is very scary. I am sure you have read it all! What about Vicky’s earlier suggestion of Depends?

    SHSP NGA The prayer vigil continues.

    Reply
  3. Donna Zimmerman says

    May 5, 2012 at 4:08 PM

    So sorry to hear this. You are all on my prayer list. Hugs…

    Reply
  4. Will says

    May 5, 2012 at 3:27 PM

    Sorry to hear this update. I pray they identify which bacteria is responsible for this latest UTI. That certainly is easy to do. I pray they can find an antibiotic than can kill off the bacteria. Have you considered using a foley catheter which can be inserted up to the bladder. If I remember right each day the catheter and bladder is cleaned with a certain solution. I forgot what it is through. Uti’s are far less frequent and even stopped along with changing the catheter monthly.

    Reply
  5. Marilyn says

    May 5, 2012 at 2:58 PM

    Ken,

    I have this terrific book about all the things you can do with vinegar. I pulled it out after reading your post today and sure enough I found something that may be useful and want to pass it along to you: “A small amount of apple cider vinegar, taken every day, keeps the urinary tract nice and acidy. This is useful to reduce the likelihood of getting a kidney or bladder infection.” Hope this is of some help.

    Reply
    • ryansrally.org says

      May 5, 2012 at 3:03 PM

      How much does it recommend giving? We currently do this, I give 50ml (2 TBSP) in water each day. WE also use elevated amounts of vitamin C and a drug called Meth Hipp to increase acidity.

      Reply
      • Marilyn says

        May 5, 2012 at 5:35 PM

        It only says “a small amount”, nothing more specific.

  6. Mary Condy Mitchell via Facebook says

    May 5, 2012 at 2:40 PM

    Good grief, praying these UTI’s stop forever!

    Reply
  7. Kathy says

    May 5, 2012 at 12:40 PM

    I am so praying for you guys.

    Reply
  8. Vicky says

    May 5, 2012 at 10:10 AM

    Ken,

    In my humble opinion… go for the IV before the infections reach the tipping point.

    Reply
  9. Gail Doyle says

    May 5, 2012 at 10:09 AM

    Ken,If anyone can find an answer ,it’s you. Always keep trying ,You will get it or maybe infectious disease Dr (That’s a good idea.) Hope Ryan isn’t in too much pain with it and will keep praying it clears up. Have a calm weekend .See you later:)in spirit, and thanks always for updates Love gail

    Reply
  10. Rita Caporicci Hoop via Facebook says

    May 5, 2012 at 8:35 AM

    You and Ryan will conquer this, Ken. Praying as always <3

    Reply
  11. Jenn says

    May 5, 2012 at 7:23 AM

    Speechless….what the heck is going on? I know you will be the one to find the answers..I will continue to pray.

    Reply
  12. Jane Martellino says

    May 5, 2012 at 7:18 AM

    Ken,
    So sorry to read this update. I can only imagine how incredibly frustrating and frightening this latest UTI must be. YOU are the one who will eventually find an answer and a solution that will not only help Ryan but countless others. You have extraordinary gifts of love, passion, commitment, dedication, and intelligence to do it.

    Still here. Still praying. Always hopeful.
    Jane

    Reply

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