Ryan is now a full two days post-baclofen. Last night was much better, as all vital signs were normal and he seemed comfortable. I’m not sure what caused the increase in respiration the night before… and probably never will. I’m still concerned that the antibiotic isn’t knocking out the urinary tract infection. Granted, he is not showing any outward signs of discomfort, but his urine is still testing positive for leukocytes and nitrites.
Bobby Flay, take a lesson here!
As for his day yesterday, I didn’t notice anything odd or concerning. He flew right through all his therapies. I took him on to the patio around four o’clock and we didn’t come back in until around nine that night. It was wonderful and the temperature stayed in the seventies the entire time (with low pollen). I threw some chicken on the grill for Sue and the nurse (with asparagus and yellow squash) and a steak for me. We I cookout at least three times a week now. I included a picture for you culinary satisfaction of the steak, salmon, and shrimp I did a few nights back. Notice the plating! We all sat around the patio table and ate with just a dim light and the glow of the half-moon. I could have stayed out all night (preferably with beer on ice).
I was encouraged to see (although not official) that he appeared more alert throughout the neuro-feedback session with IBRF yesterday morning. For now, I’ll just consider this an anomaly unless it repeats itself over the next several sessions. Good news is, the next one is tomorrow morning so we’ll be gathering another data point quickly.
It still is true that I won’t breath any easier until tomorrow at this time.
Glad Ryan resting well but WOW…what a presentation on that food! You are no rookie. The great chefs always preach to plate your food on white platters…so that the food is what is the center of attention. Looks excellent.
Still here, checking almost daily. So good to here positive news. Hugs to all of you!
Ken ,Hoping all is still going well with NO baclofen; that’s great. About another 14 hrs or so….praying Ryan’s UTI is clearing up and another good night for you all. Gail
I’m glad you are able to enjoy time outside, that is important for everyone! Being totally off the baclofen is huge. I hope you continue to see positive results. Now to get rid of the urinary tract infection…here’s hoping the antibiotic has kicked in by now. Still here
Thanks again to your neighbors, friends and contractors who made this oasis happen for the Diviney family. I am so happy for you, Sue and Ryan to be able to enjoy several hours outside with the aroma of steak, chicken and veges grilling in the air.
Remember Ken…”This Bud’s for YOU!”, have a drink and enjoy!
Ken, Glad Ryan had a good night and will keep praying reduction goes smoothly, and he has a good session with IBRF tomorrow. Hoping the UTI responds to antibiotic and Ryan gets rid of it soon. Food looks delicious…I’ll be down one night:):) Also so good you got to sit outside for a long while.Keeping you all in my thoughts and thanks for always letting us know how Ryan is. love Gail
Wow, off baclofen totally – that is amazing and so glad Ryan is tolerating it well! I know you and Sue are holding your breath. We will continue to pray everything will be smooth.
Also glad you are pushing to do some normal things like grilling on the patio Ken – I’m sure days like that are so special to you all. And you definately need a cold beer so just do it every time. 1) Turn on Grill. 2) Get Beer. 3) Get food to grill – in that order.
Thinking of you all the time. Love to Ryan!! xoxo
Hi Ken, I guess you have to wait another day or two to see if the current antibiotic is effective. How frustrating! I am praying tomorrow when you do the tests everything will be normal.
I have to admit, I stared at that picture of your delicious grilled dinner for a while — darn that looks good!!! And talk about plating, gee, I need to step up my game big time.
I can just picture you and Ryan outside on the patio enjoying spring’s beauty. Very glad the pollen wasn’t an issue for you, and I’m also hoping mosquitos won’t be a problem. There is something very healing about nature — it’s good for the mind, body and soul.
Praying that the neuro feedback sessions will look good once again tomorrow — thank you for letting us know about this!
Makes me wonder how far Ryan can go with this RES program. He is so strong and doing so well with it.
Blessings for a smooth day as we head into Day Two post no baclofen — I still can’t believe it! Way to go, Ken!!
Love,hugs, positive thoughts and ongoing prayers
Paula
I hope that everything turns out as beautifully as your mixed grill plate!
So glad Ryan had a restful night and you guys are getting to enjoy your patio!
What a guy! So glad you are married to Sue, ’cause she deserves the best!
Plated beautifully and professionally! Looks delicious.
Three cheers for Kenneth, he’s our man!
If he can’t do it, nobody can!
What a guy!
How about a little fundraising with a grilling school? But wait — who doesn’t like burnt hamburgers? !! Reminds me of a story that happened when our 3 year old granddaughter was visiting. We were “cooking” plastic hamburgers on her toy grill. When I told her that I thought they were done, she replied, “Not yet! I have to burn them like my daddy does!” Going to sign him up with you, Ken. 😉
I’ve been waiting here for your report this morning. So happy Ryan seems to ge doing well. I hope the UTI begins to respond to the antibiotic soon. I presume he is still on the minimal dose that he was on before? It didn’t keep him from getting another one, huh? If there is an answer to this, Ken, we are confident that you will fine it.
Love, prayers and best wishes for a fine day.
So glad to hear Ryan was more comfortable, and I hope that the antibiotic starts to kick in soon!
I might add you do have mad plating skills, and seeing as it is almost the lunch hour, those asparagus are calling my name!!! Nothing better than asparagus on the grill 🙂
Hope to hear some great feedback from the IBRF. I’m also thankful that Ryan’s final baclofen reduction seems to be going well.
Have a good day with our boy!!!
carla