One Day Post Baclofen

ByRyan's Rally LLC

I wish I could give you a definitive assessment of how Ryan is tolerating the baclofen reduction (to zero). It’s a tough call now and I simply don’t know what to make of it. For one, his respiration rate was up overnight to thirty per minute, nearly double his baseline. It did come down to eighteen by the time I got him out of bed at 5:30am. The good news is all his other vital signs were normal for him. Second, he seemed hypersensitive. My hope is that it means he’s more alert but it could just as easily mean he is uncomfortable. Perhaps the antibiotic isn’t knocking out the UTI (leukocytes are still present in the urine)? 

I hope to learn more as I put him through his paces today. So far it’s started out well. He is just about to finish passive peddling on the ActivCycle and there was nothing out of the ordinary. Next I put him on the RT300 FES and see how he responds to the electrical stimulation and muscle activity. If everything looks good then I’ll move him onto the exercise table for complete range-of-motion stretches followed by a full body massage.

[Update: Ryan appears to be tolerating the RT300 FES, leg cycle].

Now, if all these therapies go well then I’ll get him in the standing frame for an hour or two and see how he does. I tell you what, if he can get through all this then he deserves some relaxation time on the patio!

———–

Update, 10:00am: Completed RT300 FES therapy on both the legs and arms. Ryan did well with this! Next up is a neuro-feedback session at 10:30 with IBRF. I’m interested to see if his brain waves behave any differently.

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17 Comments

  1. I think you are doing exactly what Ryan needs. That is, all the physical activity and keeping his body engaged and moving. That I believe will help counter the change to no baclofen. Makes sense to me. Keep up the physical routine.

  2. Exciting news! I hope everything continues to improve and Ryan becomes more alert. still here,still praying. i can hardly wait for the next update! Love to all of you:-)Go team Ryan!

  3. Exciting news! I hope everything continues to improve and Ryan becomes more alert. still here,still praying. i can hardly wait for the next update! Love to all of you:-)

  4. Thanks for the update. We are holding our breath and praying, too. Go, Ryan!

  6. Ken, So glad Ryan did well on FES and hope there’s good feedback from IBRF.Still here and praying for Ryan to heal

  8. Sooooooo glad to hear that Ryan is doing everything well!
    Ryan,you are waking up!

  12. Wishing you continued success today! Rain has stopped and should be a nice warm day : )

  14. Yes, it’s time to break out the cool shades and sunscreen and bask in the glory of all your accomplishments, Diviney men! Have a blessed day <3

  15. Ken, Hoping and praying Ryan does well on all machines and with all exercises.
    Please try and keep us posted. Thinking of you all and you both need relaxation time on that beautiful patio. Wishing a calm ,peaceful day. love Gsil

  16. I think I awoke every other hour last night praying for Ryan. Will continue for as long as it takes and then some. I hope the changes you see are good signs that he has much more awareness than before.

    Yes, outdoors will be nice if the rain stops. SHSP NGA Love

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