I wish I could give you a definitive assessment of how Ryan is tolerating the baclofen reduction (to zero). It’s a tough call now and I simply don’t know what to make of it. For one, his respiration rate was up overnight to thirty per minute, nearly double his baseline. It did come down to eighteen by the time I got him out of bed at 5:30am. The good news is all his other vital signs were normal for him. Second, he seemed hypersensitive. My hope is that it means he’s more alert but it could just as easily mean he is uncomfortable. Perhaps the antibiotic isn’t knocking out the UTI (leukocytes are still present in the urine)?
I hope to learn more as I put him through his paces today. So far it’s started out well. He is just about to finish passive peddling on the ActivCycle and there was nothing out of the ordinary. Next I put him on the RT300 FES and see how he responds to the electrical stimulation and muscle activity. If everything looks good then I’ll move him onto the exercise table for complete range-of-motion stretches followed by a full body massage.[Update: Ryan appears to be tolerating the RT300 FES, leg cycle].
Now, if all these therapies go well then I’ll get him in the standing frame for an hour or two and see how he does. I tell you what, if he can get through all this then he deserves some relaxation time on the patio!
Update, 10:00am: Completed RT300 FES therapy on both the legs and arms. Ryan did well with this! Next up is a neuro-feedback session at 10:30 with IBRF. I’m interested to see if his brain waves behave any differently.