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"I tell him I tried. I tried to keep memory alive; I tried to fight those who would forget. Neutrality helps the oppressor, never the victim. Silence encourages the tormentor, never the tormented. There is so much injustice & suffering crying out for our attention. We must take sides. We must interfere. -E.W.

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You are here: Home / News / One Day Post Baclofen

One Day Post Baclofen

May 1, 2012 by Ryan's Rally LLC 17 Comments

I wish I could give you a definitive assessment of how Ryan is tolerating the baclofen reduction (to zero). It’s a tough call now and I simply don’t know what to make of it. For one, his respiration rate was up overnight to thirty per minute, nearly double his baseline. It did come down to eighteen by the time I got him out of bed at 5:30am. The good news is all his other vital signs were normal for him. Second, he seemed hypersensitive. My hope is that it means he’s more alert but it could just as easily mean he is uncomfortable. Perhaps the antibiotic isn’t knocking out the UTI (leukocytes are still present in the urine)? 

I hope to learn more as I put him through his paces today. So far it’s started out well. He is just about to finish passive peddling on the ActivCycle and there was nothing out of the ordinary. Next I put him on the RT300 FES and see how he responds to the electrical stimulation and muscle activity. If everything looks good then I’ll move him onto the exercise table for complete range-of-motion stretches followed by a full body massage.

[Update: Ryan appears to be tolerating the RT300 FES, leg cycle].

Now, if all these therapies go well then I’ll get him in the standing frame for an hour or two and see how he does. I tell you what, if he can get through all this then he deserves some relaxation time on the patio!

———–

Update, 10:00am: Completed RT300 FES therapy on both the legs and arms. Ryan did well with this! Next up is a neuro-feedback session at 10:30 with IBRF. I’m interested to see if his brain waves behave any differently.

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Filed Under: News

Comments

  1. The Colangelis says

    May 1, 2012 at 11:11 PM

    I think you are doing exactly what Ryan needs. That is, all the physical activity and keeping his body engaged and moving. That I believe will help counter the change to no baclofen. Makes sense to me. Keep up the physical routine.

    Reply
  2. Nancy Tawney says

    May 1, 2012 at 3:53 PM

    Exciting news! I hope everything continues to improve and Ryan becomes more alert. still here,still praying. i can hardly wait for the next update! Love to all of you:-)Go team Ryan!

    Reply
  3. Nancy Tawney says

    May 1, 2012 at 3:49 PM

    Exciting news! I hope everything continues to improve and Ryan becomes more alert. still here,still praying. i can hardly wait for the next update! Love to all of you:-)

    Reply
  4. Jo Hobbs via Facebook says

    May 1, 2012 at 12:09 PM

    Thanks for the update. We are holding our breath and praying, too. Go, Ryan!

    Reply
  5. Karen T. says

    May 1, 2012 at 11:52 AM

    Still here, still praying. You can count on that always.

    Reply
  6. Gail Doyle says

    May 1, 2012 at 11:45 AM

    Ken, So glad Ryan did well on FES and hope there’s good feedback from IBRF.Still here and praying for Ryan to heal

    Reply
  7. Sam says

    May 1, 2012 at 11:15 AM

    We think we should get a patio picture of Ryan:)

    Reply
    • Jo says

      May 1, 2012 at 12:03 PM

      Sam, you are reading my mind from way out there in Minnesota!

      Reply
  8. Lindsay says

    May 1, 2012 at 10:22 AM

    Sooooooo glad to hear that Ryan is doing everything well!
    Ryan,you are waking up!

    Reply
  9. Carla Liberty says

    May 1, 2012 at 10:20 AM

    SHSP, NGA!

    Reply
  10. Paula says

    May 1, 2012 at 10:11 AM

    Ken please update us again if you can!! Thank you so much!!

    Reply
  11. Ryan's Rally: We Got This via Facebook says

    May 1, 2012 at 9:59 AM

    Blog post updated at 10:00am!

    Reply
  12. Meg says

    May 1, 2012 at 9:24 AM

    Wishing you continued success today! Rain has stopped and should be a nice warm day : )

    Reply
  13. Jo Hobbs via Facebook says

    May 1, 2012 at 8:29 AM

    One day at a time… …

    Reply
  14. Rita says

    May 1, 2012 at 8:27 AM

    Yes, it’s time to break out the cool shades and sunscreen and bask in the glory of all your accomplishments, Diviney men! Have a blessed day <3

    Reply
  15. Gail Doyle says

    May 1, 2012 at 8:23 AM

    Ken, Hoping and praying Ryan does well on all machines and with all exercises.
    Please try and keep us posted. Thinking of you all and you both need relaxation time on that beautiful patio. Wishing a calm ,peaceful day. love Gsil

    Reply
  16. Jo says

    May 1, 2012 at 8:16 AM

    I think I awoke every other hour last night praying for Ryan. Will continue for as long as it takes and then some. I hope the changes you see are good signs that he has much more awareness than before.

    Yes, outdoors will be nice if the rain stops. SHSP NGA Love

    Reply

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