It just happened! Ryan’s baclofen rate is now at zero. Mark the date. April 30, 2012 at 11:23 am. Can you believe it?
I’m scared. Not sense masking my feelings. The next three days will be nerve-racking as I watch for any negative effects and hope for more alertness. Like every single time before, the first twenty-four hours are the most telling. Oh, how I wish it were tomorrow afternoon. Really, it just can’t get here fast enough.
I thought you might be interested in a table that I kept in Excel, showing each reduction. Including it in this post also allows me to quickly reference it myself. I remember each one with crystal clarity.
| Date | mcg/day Rate | mcg Reduced | % Reduced | % Total |
|---|---|---|---|---|
| 09/24/10 | 425.0 | |||
| 12/30/10 | 399.7 | 25.3 | 6.0% | 6.0% |
| 06/30/11 | 350.1 | 49.6 | 12.4% | 17.6% |
| 08/22/11 | 315.1 | 35.0 | 10.0% | 25.9% |
| 10/19/11 | 287.7 | 27.4 | 8.7% | 32.3% |
| 10/31/11 | 259.7 | 28.0 | 9.7% | 38.9% |
| 11/9/11 | 225.1 | 34.6 | 13.3% | 47.0% |
| 11/22/11 | 199.8 | 25.3 | 11.2% | 53.0% |
| 12/13/11 | 175.0 | 24.8 | 12.4% | 58.8% |
| 12/28/11 | 155.0 | 20.0 | 11.4% | 63.5% |
| 01/12/12 | 135.0 | 20.0 | 12.9% | 68.2% |
| 01/26/12 | 109.9 | 25.1 | 18.6% | 74.1% |
| 02/14/12 | 96.1 | 13.8 | 12.6% | 77.4% |
| 02/28/12 | 80.1 | 16.0 | 16.6% | 81.2% |
| 03/15/12 | 59.98 | 20.12 | 25.1% | 85.9% |
| 04/03/12 | 44.93 | 15.05 | 25.1% | 89.4% |
| 04/16/12 | 29.99 | 14.94 | 33.3% | 92.9% |
| 04/30/12 | 0 | 29.99 | 100.0% | 100.0% |
It was a lot of worrying. Seventeen times (over 16 months) we worried for three days following each reduction. That’s 51 days, for Pete’s sake! In the end, it was worth it. That is, if today’s reduction goes well.
Congratulations! We’re all hoping right along with you that everything goes smoothly the next few days. What a milestone. I’m so glad Ryan has been able to decrease, and now eliminate, the Baclofen. And I hope his alertness increases as a result! Great job, Ken! (and of course, Ryan!)
All right!!! Way to go! I think the fact this was done gradually over a long period will lead to success. We continue our prayers to God to support you and continue helping Ryan. God Bless You.
YOU ARE A ROCKSTAR KEN DIVINEY!!! YIPPEEEEY YAHOOOEY!!!
IMAGINE THE POSSIBILITIES !!!!! YAY!!!!! You are providing your RYAN with every opportunity to heal and then some!! Without you, Sue and Kari this wouldn’t be happening!!! It is my understanding from an earlier post that most TBI doctors wouldn’t attempt to do what you’ve already done… correct?? You are paving the way for not only Ryan but for countless other TBI patients!
GOD BLESS YOU all!!
Praying for progress, complete healing and for tomorrow afternoon to come today!!
With love and in prayer,
Keri, MY Frankie and Family
yay!!!! Great news!
I hope all goes well – so hoping for more alertness. You deserve this Ken, you’ve worked hard for it – Ryan is lucky to have you. Can’t wait for the next post!!
That is great news Ken! Tomorrow will come soon enough : ) I know we are all looking forward to reading your post tomorrow. Have a wonderful and restful night!
<3 This is it: April 30, 2012 at 11:23! <3
This is wonderful news! Sending prayers for a peaceful transition!
Still praying here, wishing wewere there keeping watch over Ryan, but this job belongs to the good Lord with you helping. He’ s got this. 🙂
Ken ,This is totally awesome and will keep hoping and praying ,like before, there are no side effects and some alertness. Hang in there You guys and Sue!!
love gail
Praying for a smooth transition away from baclofen!! Go Ken!! Go Ryan!! This is awesome!!
You are setting the new gold standard for TBI. CONGRATS!
God BLESS you! WOW – God has His own purposes for what He allows and this journey although it is strenuous in so many ways – not to mention emotional and heart wrenching at times – also glorifies God as Almighty. Your faith is just unmatched – I have never seen anything like this personally, and I thank you for keeping US all encouraged. Through the ups and the downs, the disappointments, and everything else, you always give us hope and a new reason to praise and honor our AWESOME GOD! God bless you all – love and prayers1
Incredible!!! Praying it will be yet another (and final) peaceful transition for all of you….
Love and prayers, Peggie
Your courage and Ryan’s determination are the perfect combination. I’ve been praying for this day. One.Step.At.A.Time
Love,
Carla
Woohoo for you and Ryan breaking new ground in the field of TBI medicine! We are praying you all through this final period of Baclofen reduction anxiety, confident that Ryan is up to the task. Let’s celebrate this incredible milestone on the 30th of every month from now on 🙂
Excellent! Praying for the best!