Yesterday started out rough. Then… it got rougher. We were told the results of Ryan’s dexascan (bone density test).
Last year at this time we learned Ryan had osteopenia. This means the bones are not normal, but haven’t progressed to osteoporosis. We made a ton of changes to his diet (mainly calcium) and therapy. I placed emphasis on weight-bearing exercises and used the standing frame everyday.
I suppose I knew from the femur fracture that things were not looking good. With the ulna (forearm) not completely joining after a full year it just made it all the more clear. I was just holding out hope that Ryan’s bones might not be as bad as it seemed. I was wrong. Like most things with brain injury, hopes are easily squashed. Ryan does, in fact, have osteoporosis.
Now comes the treatment with more drugs to increase bone density (or, at least, slow it’s deterioration) and different drugs (like Zantac) to treat other conditions. The simple truth is the best way for Ryan to recover (to some extent) is to put the bones under desirable physical stress. They must continue to bear weight. Just as importantly, they need to be pulled by his muscles during physical activity, something passive exercise simply can never give.
There is a possible solution with a therapy device called MotoMed FES (electrical stimulation), or others that are even more deluxe, that IBRF wants us to buy. Aside from increasing bone density, it provides cardio benefits by electrically working the muscles, and might help Ryan relearn movement. I listed this as a fundraiser recently and people contributed almost $1,300 toward its cost of $9,200 (likely more). There is no doubt Ryan will get this, because he must. But, we sure could use help. The sooner, the better since it seems to take forever to get equipment once it’s ordered.
I’m asking everyone, if you are able, please help us in getting this. Like everything, it will be channeled through Ryan’s Special Needs Trust Fund. People can mail us their contribution (Ryan Diviney SNT, %MotoMed, 21092 Carthagena Ct., Ashburn, VA 20147) or through Ryan’s FaceBook Fan page (or just read about it), via PayPal by clicking here.