The first twenty-four hours since the baclofen reduction is almost reached. The dosage was dropped from 96.1 mcg to 80.1 mcg (a 16.5% reductions). Ryan appears as though he is tolerating it well and I’m not seeing any negative effects. He rested well overnight. Like all the other times before, I’ll know better as I put him through his therapies. As I write this he is on the ActiveCycle working his legs and all seems fine. Of course, I’ll feel a hell of a lot more confident after the seventy-two hour window passes.
In anticipation of continued success, I tentatively scheduled the next reduction on March 15th. I’m thinking the infusion rate should be knocked down to at least 65 mcg, but it might be worth going to 60 mcg. I’ll just follow my instincts that, so far, haven’t let me down. It’s just crazy to me that he was at 400 mcg last year at this time. It was in June 2011 that we went balls-out with the reduction schedule.
Here’s the thing… these reductions never become less stressful. Each time it’s done I become über alert, looking for the smallest sign of discomfort or improvement. I’m telling you if it backfires I’d never forgive myself. Ryan has been through too much already and I would feel awful if a decision of mine led to more. So, if you don’t mind, I’ll save my bragging about it to when (and if) the baclofen is no more. Until then I’m afraid I’ll just jinx it.
Also, it’s really hard to believe that Ryan might be off baclofen entirely before the long days of summer roll around. I’ll make this my birthday present to myself if this happens (my birthday is in June… save the date).
Hey, it’s better than a power tool or a tie, right?