My apologies for not posting yesterday. I tried several times, but so much was happening that it simply wouldn’t allow. It was crazy-busy — but in a good way — with one thing on top of the other. It was all-day pandemonium, starting at six in the morning and not settling down until eleven at night.
The forthcoming list is by no means everything. Not even close, as it turns out. I’m trying to hit the major topics of the day without losing your interest (or, at least, as much of it).
Here’s an update on this weeks activities:
- Kitchenette.This hit a slight (and unavoidable) delay, pushing completion back about a day-and-a-half. The
area is fully functional now, but needs some touch-up and finish work. Expected completion is before noon today (I’ll include photos in an upcoming post). It’s so much better than we ever imagined. Blue Moon Construction is a wonderful, caring company. I’m not joking, they actually leave their work area cleaner than when they arrived. Their attention to every detail is remarkable, right down to their appearance and clothes. The neat thing is he hires a staff that is not only extremely skillful, but equally intelligent and courtesy. He has made his company an outstanding culture to work in. This is a direct reflection on him… a great guy. I could go on-and-on, but I’d just seem sappy. Let me just say, he ranks right up there with Dr. Hinkle… my gold-standard of a great man.
- Van (Chick Magnet). The last part is (finally) due in this morning and they say the van should be ready by late this afternoon.
- UTI. Ryan is seemingly responding well to the antibiotic and no change in medication is necessary. The urine culture identified the strain of bacteria as Escherichia coli (E. coli). This is the most common type of urinary tract infection since it often resides in the bowels and is easily spread. I’ll need to completely check our cleansing practices on him to make sure we’re not somehow spreading it. We’re so careful about how we tend to him that this is driving me crazy trying to come up with any possible way this might happen.
- Kari. She’s home! She arrived last night and our home immediately became much happier. Except for one class (Spanish II), all her grades are in. So far, she’s earned all B’s and one A. I had to laugh when she brought in one of her old diaries she came across in her room. She was 7 years old when she wrote in it. The entry reads, “My brother is so annoying. Ryan said it’s okay because it’s the law”.
- Let Your Voice be Heard Fundraiser. It’s happening all day tomorrow (Saturday, December 17th) at the Herndon Mediterranean Breeze! Sue or I plan on attending in the evening when the event takes on a party atmosphere at their sports bar and Ryan is settled in. Click here for details.
- Baclofen Reduction. Ryan is handling the reduction without any clear negative effects (I think). We also feel he is more alert (but not necessarily more aware). I’m wondering if we are nearing his ideal level.
- Concrete Project. The plan is to hold a final design meeting next week and begin the work on Wednesday (December 21st). From what I’m told, this should be a two day project.
- IBRF/3-D Brain Model. We scheduled a Skype video-conference with the IBRF team on Tuesday, December 20th to review the details from their last visit.
- Respiratory. Ryan is doing better with this over the last two days. I continue aggressive therapy to help him overcome it.
- Holiday offerings. So many people are asking what they can get us for the holidays. Thank you for keeping our family in your thoughts. Really though, we don’t need anything for us, but we do appreciate any help with items from Ryan’s Wish List.
I never hide that I do everything I can to help Ryan’s situation. I’m a bit mad about it, actually. But, here’s the thing… you are too! I looked over my list (above) and half of the items are possible because of you. Ryan was always selective with the people he surrounded himself with. Nothing but people of high character, no exceptions. For us, you actually sought us out and circled your wagons. I still can’t believe we are this protected and cared for — in every way — by so many people. This is an amazingly strong social circle.
You treat us so well. Thank you!