The doctor team from the IBRF (International Brain Research Foundation) is coming later today to do their quarterly assessment on Ryan. Aside from the standard poking and prodding, Ryan is hooked-up to a qEEG (Quantitative Electroencephalography). This gives an electronic rendering of Ryan’s brain activity in both wave and mapping forms.
It’s nerve-wracking waiting several weeks for the results. It takes the amount of time for the team to quantify the results since a ton of information is gathered during the session. I do my best to push it out of my mind. Still, it’s always in the back of my mind weighing on me. Weird, I’m both anxious to get the results and, at the same time, don’t want to hear the results. Stress… so much a part of my life. It really sucks. Big time.
qEEG performed in April.
Many might remember the results were fairly encouraging from April’s qEEG. If not, just read my post Scary Good. That should bring you up to speed quickly. Oh, how I hope for a similar outcome this time around.
Now, back to today. What this means for Ryan is I’ll need to accelerate his schedule this morning. I have to strike a delicate balance between providing him therapy and not exhausting him. I want him as alert as he possibly can when the tests are performed. With this in mind, I’ll do everything but decrease the duration and intensity to around 25% of normal.
On a completely different topic, please take just a minute or two to vote for Yes, Grace Rocks! in their campaign to win a grant for their charity. This organization has supported Ryan, in many ways, right from the beginning. It would mean so much if we could give something back (I rarely have this opportunity). It’s so simple. Just click on this link to go directly to their page and click on Vote for Us Today.
Vote for Yes, Grace Rocks!
Currently, they have around 530 votes. Let’s see if we can make this number surge.
Hey Ken,
what is the results of the latest visit? I had thought they were going to have it back to you a week ago and at first I was really worried it was bad news you were taking time to digest but as times goes on, your spirits seem fine. I assume this means that nothing has come back yet?
deb
No word from IBRF yet. I am keeping a status in the “News and Information” crawl/ticker at the top of the home page.
Always here. Always praying for Ryan, Sue, Kari and you too Ken. May you somehow feel the lifting up that we send your way. We will wait with you with positive thoughts for the results of this today’s testing.
Faith, hope and love from us to you.
I hope that all of us, friends, loved ones, and “strangers” like me, can always be your platform for speaking your mind, laying it all out, and maybe easing your pain just one tiny bit, no matter what. Many of us have said it before: we cannot imagine what you are going through, we admire you, we are here for you, and we are not going any where.
If you can put your thoughts, feelings, fears, pain, into words, maybe we can lift you up a little bit…..
I’m still here, thinking of you guys and praying for good news with the results of the IBRF quarterly assessment. Stay positive, stay strong, and know that we are here for you. Always remind yourself: We Got This!!!
I’d love to stop by for a quick visit on Saturday, August 6th after we arrive from the Ride For Ryan. I know you have contractors at the house and things are really busy, so if my visit will be an inconvenience, just let me know (you won’t hurt my feelings).
Hi Ken,
Have been thinking of you, Sue, Ryan and Kari. I haven’t been on the computer much since the surgery but you have never been far from my mind. Here’s hoping that the tests go well and that you have a peaceful rest of the day. Don’t worry about posting if you aren’t feeling up to it….or if you feel you must, put a two second blurb out there….”Not up to an entry day, send Skittles instead” 🙂
SHSP, NGA & definitely already voted for Yes Grace Rocks!
Love,
carla
Carla NO MORE SKITTLES! I want Ken to have his teeth when Ryan wakes up!!! <3
We voted..keep the faith! SHSP
Dear Ryan, almost lunch time and you have a big afternoon ahead of you. We know from the signs you are giving that you are making progress (like holding your own head up). Show off a little for your Dad today and be the fighter you have ALWAYS been. Tonight maybe he will pull out the cigars and “movies” if you work super hard. Love you Ry, as always.
My thoughts are with Ryan during the test. I was wondering if you didn’t do Ryan’s exercise routine before the team arrives maybe you would get a better picture of Ryans progress. I would think that his therapy before the test would activate neurons in his brain that might give a false reading. Just a thought.
It’s all been said already. Will vote–still here.
I know today is a big day for all of you, but I know your concerns are for naught. Ryan is doing so well and he looks so good. He has improved so much since April, the qEEG will have to be better. Praying for you to find peace in this knowledge. Thinking of you always, SHSP, NGA!
Was getting pretty concerned when you didn’t post for a few days, so I’m glad to hear that things are moving ahead. The “Scary Good” post was encouraging… which means that today I’m expecting even BETTER test results 🙂
Me too! We have this in common with Ken–we’re worriers!
I was down in the dumps pretty deeply. Thought it would just be too depressing to post.
No, no, no! We always want to know how you are, and how things are going, but I know–it’s tough to write or be creative when you are blue. Even the sunrise didn’t have the colorful beauty on some of the past mornings–just glum. Like this morning, rising colorless into that white sky predicting another hot one.We are here for you always. Express it–bitch it if you need to!! You are always on our mind. Love
I agree – you can not expect every post to be positive in your situation. Down and blue posts are a part of your life. We are here for you and Ryan and Sue and Kari, please LET us be here for you – which means posting the good, the bad and the ugly.
We still need to hear from you Ken!!! If we don’t…something is missing from our day…namely…*you*
Hugs, Paula
Hello Ken,
Today is a big day. You’ve got a lot on your plate ( as usual!!). I’m praying for all the tests to go smoothly, and for your anxiety to be relieved. I can only imagine the stress you and Sue must feel waiting for the results of these tests. Hoping that by the grace of God you can get some decent rest tonight. You are in my thoughts and prayers all the time.
Please let us know if there is anything we can do to help.
Love & hugs, prayers, Paula
Ken, Thanks for update and praying results are GOOD. I just cannot imagine the stress this all puts on you and hoping for good things to happen. Ryan looks so good (know this was Apr.) but he still does Peace be with you all Hugs to Ryan Gail P.S. Will vote