Last week I noticed that Ryan wasn’t putting out much urine at night. Always below 500ml, or roughly two cups. In fact, it is usually around 250ml. At first, this caused me some concern. Yet, he was making up for it during the day. The urine was clear and odorless, his blood work showed a dead-center normal white blood cell count, and our weekly home urine test was normal. I was perplexed, to say the least. I welcome most changes as positive signs, but with a skeptical eye.
Then, an idea hit me that might explain it. Hopeful thinking?
What if, perhaps, Ryan was sleeping a more normal sleep. One closer to as we (by “we” I do not include myself) experience. This would certainly explain the decline in urine overnight. His body, maybe, is holding it until he gets up in the morning. This would be a good sign, indeed.
I just wish I could know for sure. Knowing might be possible if we can coordinate the sleep study recommended by IBRF. Sue will be working on getting this in motion today.
New CPM on Way
Many will likely know WVU Professor Daniel Brewster. He has done so much for this family, including Kari. Some time ago he bought a CPM (Continuous Passive Motion) machine for Ryan’s legs. Well, it served it purpose well. It was used so much that the motor burnt out.
This machine kept Ryan’s legs limber. It prevented blood clots from forming. It reduced the frequency of urinary tract infections. Yes, my friends, it performed well.
I was mortified when I noticed the distinct electrical smell emanating from it, knowing its time was short.
So, I began looking into replacing it. I even posted it on Ryan’s Wish List. This is where it was noticed by a family in Oklahoma who owns one. It was used for their elderly mother until her passing. They send me an email telling me they would love to donate it to Ryan! Long story short… it will be here tomorrow!
- Pay attention to the color and smell of your urine (kevinmd.com)