Overnight Fever
Well, the streak has ended of days without a fever. It was a good run. In the late morning hours Ryan began to develop a slight fever, topping out at 100.3 degrees. Since getting him up, it has steadily decreased. Now at 99.4 degrees.
I see no sign that this is infection-related. Especially since it’s coming down on it’s own since getting him out of bed. Still, I definitely have my radar up.
Sue Visits IBRF
Despite a head-splitting migraine, Sue trekked to the Meadowlands (New Jersey) late-yesterday to meet the IBRF staff. She was very much pleased with the visit and enjoyed meeting all the people who are helping Ryan. IBRF has many innovated elements coming and they tell us Ryan will be included.
Medaowlands Hospital www.secaucustax.com
Not anytime soon, but Ryan will likely spend two or three months back in New Jersey for intensive analysis and treatment.
Emotions Get the Better of Us
Just before 11:00 PM, I received the following text from Sue: I’m having such a rough night. I miss Ryan so badly. What Sue didn’t know is I was having a tough time too. It happens sometimes, when the reality of it all just sneaks up on you. What usually doesn’t happen, though, is for both of us to be having this feeling at the same time.
There was no way I was going to let on that I was a wreck. If I know Sue (and that’s debatable, as she claims), she would have been on the next flight home. I sat in the family room away from Ryan, doing my best to fake-out the nurse that I was really into some nature show (Monster Bug Wars, as I recall). I looked around a room filled with therapy equipment and hung my head. It’s still hard to believe this is happening. Sue’s text was the tipping point. I did my best to not fall apart. All-in-all, I held out fairly well. I also learned a lot about fiesty bugs…
Your suffering leaves me speechless. Talk is cheap. God Bless–that is the most helpful I can say.
Diviney Family My Prayers goes out to You and Ryan. I Pray God show a miracle in Ryan is My Daily Prayer. My Prayers continue! May God Bless You All!
Ken, you’re probably spot on that Ryan’s fever probably isn’t infection related. I often run a low-grade fever whenever my allergies are acting up (as they are now — URGG!). And I fully agree with Jo that you are more than past-due for a Ken Day. Please know and remember that many of us are here for you, not just with the quiet, behind-the-scenes support, but whenever you need us. Please call or email us. We want to help you and we’ll meet you at your needs. I hope you & Ryan & Sue have a better day today. Hugs & prayers!! Dianne
Always remember we are here for you, even in the midst of what must feel like a surreal, unreal, unending heart wrenching dream. No one can survive the heartbreak of life alone, we’ve all got to link up soul to soul and stick together. When I read that Ryan would be back in Jersey for two to three months, I got a lump in my throat. I assume you will go to stay with him there? I am so grateful for this innovative, breakthrough treatment the IBRF has developed and continues to expand. They are moving neuroscience beyond the old boundaries and showing that there is indeed hope when it comes to helping a person’s brain to heal. Praying for peace, comfort and renewed hope for you and Sue. You both are amazing people and parents,
and you have strong, beautiful children. We’re all backing you up 110%, and the circle of love continues to grow day by day. Thinking of you and Sue, Kari and Ryan, and trusting in the Lord for His mercy and grace. Love & prayers, Paula
Dear Ken, Mythoughts and prayers are with you and Sue..I can’t even imagine what you are going through,but I feel in my heart Ryan is coming back. You ,Sue, Kari and Ryan have made thousands of friends from all over and we will be rooting and praying for things to get better.Know we are Still here and always will be…Peace to you all
It’s in times like these that I hope you find comfort in knowing that there are countless people like myself who are concerned for, thinking about and praying for you, Sue, Kari Ryan and the entire family.
May you find strength in numbers.
Ken: Stay as strong as you have always been. Our son is making slow but steady progress on his road to recovery and it will be the same for Ryan. Please know you and Sue are doing everything you can for this to come about.
Ken /Sue,
I can’t begin to fathom your pain and the emotional rollercoaster you endure. What I can do is be there for you – in any capacity I am able to be. Know that I, as well as many others, will help you to bear and/or lighten the load. We are here for you, we always have been, and we are not going anywhere. Together, we will pray our way through, and when Ryan wakes we will be there to help you celebrate.
Sending love and hugs to all of the Divineys and Burricks.
Carla
As always, Ken, you are all in my prayers, but there are bound to be times like you just described. I hope they are few, and that you can take a Ken Day soon.
Still here.