Preparing for IBRF Conference Call
It’s crazy. So many balls in the air (and some are not even blue). It takes us hours just to prepare for a conference call with the doctors at IBRF. Both their time and ours is highly valuable, so we do our best not to miss anything.
I spent the morning putting together an agenda for the call. No easy task! It’s often more daunting than running a business meeting.
I thought you might be interested in what we discuss on the call, so I copied it from my Word document and included it below.
AGENDA
| Topic | Details | Action | Responsibility |
|
ADMINISTRATIVE |
|||
| Update on Ryan |
|
Report on our observations. | Ken/Sue |
| Sue’s Visit |
|
Arrange meeting. | Sue & IBRF |
| Blood Work |
|
Need Script | IBRF |
| 501(c)(3) |
|
Establish tracking and reporting mechanism. | Sue & IBRF |
| Stem Cell |
|
Explain determination for timing of stem cell replacement. | IBRF |
| Weekly Skype Conference Calls |
|
Arrange calls. | All |
| Electrical Brain Mass Scan (Meadowlands) |
|
Provide appointment information ASAP so transport can be arranged. | IBRF |
| 3-D Digital Brain Model |
|
Provide timeline | IBRF |
|
THERAPY |
|||
| LED/Infrared/Photonic Therapy |
|
Provide treatment details | IBRF (Therapy protocol)Ken (Application) |
| Acupuncture |
|
Has IBRF been in contact with the Acupuncturist we forwarded? | IBRF |
| Gait Therapy |
|
Find one. | Ken/Sue |
|
MEDICINE |
|||
| Provigil |
|
Need Script.Was it sent to Dr. Rodriguez? | IBRF |
| Oxoloacetate (see attachment) |
|
Offer opinion. | IBRF |
| Inosine & NEP1-40 (see attachment) |
|
Offer opinion. | IBRF |
| Estrogen/Proestrogen |
|
Still part of the treatment protocol? | IBRF |
| Amantadine (50mg/5ml)Dosed 10 mg BID |
|
Increase?If so, need script. | IBRF |
| Senna |
|
No noticeable adverse effect | Ken |
| Baclofen Infusion |
|
Consider reducing rate to 375 mcg, or will meds coming on-board necessitate keeping at 400 mcg? | IBRF |
|
qEEG |
|||
| qEEG vs. MRI |
|
Compare qEEG and MRI. | IBRF |
| Photic Stimulation |
|
Explain | IBRF |
| Audio Stimulation |
|
Explain | IBRF |
| Physiological Signals (HR, SpO2, limb movement, etc). |
|
Explain | IBRF |
| Video qEEG |
|
Explain | IBRF |
| Theta Waves |
|
Explain | IBRF |
Attachments *****STILL NEED TO INCLUDE******
- Medicine List
- Oxoloacetate Article
- Inosine & NEP1-40
Wow, I agree the docs must love working with folks that are so pro-active. I didn’t realize Ryan was responding to a move thumb command. That is very encouraging. Keep up the diligence guys, it seems to be paying off As always, strong thoughts and good vibes your way.
Ken , No business meeting could ever be this complicated..Good luck with call
Ken, you’re right, this is worse than planning for a business meeting!! Plus, I felt like I just took some introductory medical school class. *Thank you* for sharing all this information with us, it is fascinating to see the methods the IBRF team is using to help Ryan continue to recover. Adding acupuncture sounds like a fantastic idea — would you mind letting us know who it is? I keep meeting great professionals here that I would like to refer or go to myself. Do you guys record these IBRF calls in case you want to double check something? You are so thorough and on top of everything. The docs probably love working with you because of that. Ryan is blessed to have you, Sue and Kari in his corner. I feel blessed to have met your family and to know Ryan. What beautiful children you have. Please continue to keep us posted on whatever help you might need. Sending love and prayers as always, Paula
Ditto! Paula, you said it all so well.
Ken, you probably have already done this, but I’d send them this list to so maybe they can have answers to some of your concerns/questions, instead of putting it on their “to do” list.
Talk about overwhelming! WOW! It is much more daunting than setting up a meeting where I work! I hope it goes as you want!