• ChooseProgress.net (Criminal Site)
  • Ryan’s FB Fan Page

We Got This!

"I tell him I tried. I tried to keep memory alive; I tried to fight those who would forget. Neutrality helps the oppressor, never the victim. Silence encourages the tormentor, never the tormented. There is so much injustice & suffering crying out for our attention. We must take sides. We must interfere. -E.W.

  • Home
  • Give
    • Donate
    • Wish List
      • Wish List Items Needed
      • Wish List Orders Received
  • The Story
  • Blog
    • Main Blog
    • Guest Articles
  • News
  • Photos
    • Photos
    • Video
  • About
    • Contact Me
    • About Ryan
    • Keep Ryan Relevant
    • About Me
    • About RyansRally.org
  • Legal
    • Website Disclaimer
    • Civil Lawsuit Complaint
  • Commonly Asked
You are here: Home / News / IBRF Conference Call Tomorrow

IBRF Conference Call Tomorrow

April 20, 2011 by Ryan's Rally LLC 6 Comments

Preparing for IBRF Conference Call

It’s crazy. So many balls in the air (and some are not even blue). It takes us hours just to prepare for a conference call with the doctors at IBRF. Both their time and ours is highly valuable, so we do our best not to miss anything.

Image via CrunchBase

I spent the morning putting together an agenda for the call. No easy task! It’s often more daunting than running a business meeting.

I thought you might be interested in what we discuss on the call, so I copied it from my Word document and included it below.

AGENDA

Topic Details Action Responsibility

ADMINISTRATIVE

Update on Ryan
  • Vitals have been amazing.
  • We feel (mostly) certain he is responding to “move thumb” command.
  • Tone continues to decrease.
Report on our observations. Ken/Sue
Sue’s Visit
  • In NY on business next week (Mon & Tues)
  • Would like to visit IBRF office on Tuesday evening (4/26)
Arrange meeting. Sue & IBRF
Blood Work
  • Dr. Halper wants “Bleeding Time”, specifically.
  • Requesting CBC, Metabolic, Thyroid, Testosterone, Albumin, etc.
Need Script IBRF
501(c)(3)
  • How tracked?
  • How notified of income & outgo?
Establish tracking and reporting mechanism. Sue & IBRF
Stem Cell
  • Does the opportunity ever expire?
Explain determination for timing of stem cell replacement. IBRF
Weekly Skype Conference Calls
  • Would like to arrange an on-going day & time
Arrange calls. All
Electrical Brain Mass Scan (Meadowlands)
  • Status?
  • What does it offer/benefit?
Provide appointment information ASAP so transport can be arranged. IBRF
3-D Digital Brain Model
  • Completion Status?
  • Duration to simulate treatments?
  • ETA of practical use in-home (tcds)
Provide timeline IBRF

THERAPY

LED/Infrared/Photonic Therapy
  • New configuration?
  • Increase frequency and/or duration?
Provide treatment details IBRF (Therapy protocol)Ken (Application)
Acupuncture
  • Dr. Halper recommended considering therapy.
Has IBRF been in contact with the Acupuncturist we forwarded? IBRF
Gait Therapy
  • Dr. Halper felt bipedal motion might benefit.
Find one. Ken/Sue

MEDICINE

Provigil
  • Dr. Halper would like to start.
Need Script.Was it sent to Dr. Rodriguez? IBRF
Oxoloacetate (see attachment)
  • Ken sent email on 2/8 asking for opinion on use.
Offer opinion. IBRF
Inosine & NEP1-40 (see attachment)
  • Ken sent email on 4/20 asking for opinion on use.
Offer opinion. IBRF
Estrogen/Proestrogen
  • In Jan., IBRF on-site visit, Ken & Dr. Halper discussed adding this.
Still part of the treatment protocol? IBRF
Amantadine (50mg/5ml)Dosed 10 mg BID
  • Increase dosage?
Increase?If so, need script. IBRF
Senna
  • Discontinued as part of Bowel protocol 3 weeks ago
No noticeable adverse effect Ken
Baclofen Infusion
  • Currently at 400 mcg, continuous.
  • Episodes of posturing greatly reduced.
Consider reducing rate to 375 mcg, or will meds coming on-board necessitate keeping at 400 mcg? IBRF

qEEG

qEEG vs. MRI
  • With changes evident in qEEG, did MRI correlate?
  • Explain previous MRI vs. history.
Compare qEEG and MRI. IBRF
Photic Stimulation
  • What happened in occipital region during flashing lights?
Explain IBRF
Audio Stimulation
  • What happened in temporal region during tones?
Explain IBRF
Physiological Signals (HR, SpO2, limb movement, etc).
  • Are physiological signals captured during EEG tracing?
Explain IBRF
Video qEEG
  • Any benefit to simultaneously videoing during EEG?
  • Would this allow for closer correlation between EEG waveform & Ryan’s activities?
Explain IBRF
Theta Waves
  • Were there too many?
Explain IBRF

Attachments  *****STILL NEED TO INCLUDE******

  • Medicine List
  • Oxoloacetate Article
  • Inosine & NEP1-40
Enhanced by Zemanta

Please! Share this:

  • Click to share on Facebook (Opens in new window)
  • Click to share on Twitter (Opens in new window)
  • Click to share on Pinterest (Opens in new window)
  • Click to email a link to a friend (Opens in new window)
  • Click to print (Opens in new window)
  • Click to share on LinkedIn (Opens in new window)
  • Click to share on Reddit (Opens in new window)
  • Click to share on Tumblr (Opens in new window)
  • Click to share on WhatsApp (Opens in new window)

Filed Under: News Tagged With: IBRF

Comments

  1. sally ellis says

    April 20, 2011 at 8:11 PM

    Wow, I agree the docs must love working with folks that are so pro-active. I didn’t realize Ryan was responding to a move thumb command. That is very encouraging. Keep up the diligence guys, it seems to be paying off As always, strong thoughts and good vibes your way.

    Reply
  2. Gail Doyle says

    April 20, 2011 at 1:48 PM

    Ken , No business meeting could ever be this complicated..Good luck with call

    Reply
  3. Paula says

    April 20, 2011 at 12:12 PM

    Ken, you’re right, this is worse than planning for a business meeting!! Plus, I felt like I just took some introductory medical school class. *Thank you* for sharing all this information with us, it is fascinating to see the methods the IBRF team is using to help Ryan continue to recover. Adding acupuncture sounds like a fantastic idea — would you mind letting us know who it is? I keep meeting great professionals here that I would like to refer or go to myself. Do you guys record these IBRF calls in case you want to double check something? You are so thorough and on top of everything. The docs probably love working with you because of that. Ryan is blessed to have you, Sue and Kari in his corner. I feel blessed to have met your family and to know Ryan. What beautiful children you have. Please continue to keep us posted on whatever help you might need. Sending love and prayers as always, Paula

    Reply
    • Dianne says

      April 20, 2011 at 3:37 PM

      Ditto! Paula, you said it all so well.

      Reply
  4. Sam Durham says

    April 20, 2011 at 11:45 AM

    Ken, you probably have already done this, but I’d send them this list to so maybe they can have answers to some of your concerns/questions, instead of putting it on their “to do” list.

    Reply
  5. Michele says

    April 20, 2011 at 11:14 AM

    Talk about overwhelming! WOW! It is much more daunting than setting up a meeting where I work! I hope it goes as you want!

    Reply

Leave a Comment. I read EVERY one! Cancel reply

Featured Articles

Just One More Time. Forever is Worth it.

Wife's Turn: Family. It's What We Do.

Ryan, I know What You're Thinking.

I Lost My Big Brother that Night.

Her Turn to Cry: I Want the Old Ryan Back.

I Lost My Hero.

Most Commented Articles

  • Austin Vantrease Father: “Wrong Place, Wrong Time” (155)
  • Ryan Does Something New (155)
  • Ryan has Potentially Life-Threatening Infection (146)
  • Ryan in ICU. Illness Identified. (131)
  • Five Years (131)
  • Kari Diviney: Victim Impact Statement. (125)
  • “Just Let God Have Him” (and Other Stupidity) (123)
  • Austin Vantrease Siblings Speak Out (101)
  • Austin Vantrease Parole Hearing Scheduled (2013) (97)
  • Skull Surgeries Necessary (95)

Log In

SSL Certified: We are Verified & Secure!

Get Email Alerts of New Posts!

Contact Information

Ryan's Rally, ℅ Ken Diviney
21092 Carthagena Ct.
Ashburn, VA 20147
kdiviney@ryansrally.org

Search Ryan’s Rally

Copyright © 2023 · Metro Pro Theme on Genesis Framework · WordPress · Log in