As of this posting we still have not heard from the team at the IBRF. I’m beside myself with anxiety. I promise, I will post as quickly as I can — good or bad — after I know.
Now, onto my latest tirade. I’m a bit hesitant to bad mouth, especially after hearing from all the “mandated reporters” out there a while back :). Yet, my inability to keep my foot out of my mouth compels me.
Sue came across a Waiver offered by Medicaid that will actually pay me to care for Ryan. Granted, it’s not much but it’s (just barely) worth it to jump through hoops with this agency to put toward Ryan’s medical costs. I’d say the main drawback is Sue will technically be my boss! She’ll sign my time sheets and access my performance. You know, what she pretty much does already.
After verifying that there is a grievance system in place against my supervisor, I agreed to this. I’ll definitely be bucking for a promotion… time to brush up on all those annoying business catch phrases.
Really, I’m looking to expend 110% for a win-win situation, but I’ll need to think outside the box and hit the ground running. At the end of the day, I’ll pick the low hanging fruit while seamlessly integrating my A-game. Being the devil’s advocate, I’ll need to manage expectations while taking a proactive approach. If you have a problem with that, we can take it offline.
Okay, what was I saying?
Oh, yea. I was getting ready to tell about my irritation with Medicaid.
It seems my accounting of the day doesn’t quite make sense to Medicaid. For example, they want to know why I need to move Ryan for more than four hours a day. I know what your thinking. I thought the same thing. But, the obvious answer of “because he’s in a coma and can’t move for himself” is simply not logical to them. I just wonder if they would appreciate not moving for over 20 hours a day. Granted, I constantly have Ryan in motion, at least 14 hours a day… but four hours seemingly is too much? What the heck?
Why, they wonder, does it require so much time to prepare, wash, fold, and put away laundry. I wonder, should I just send them their denial for disposable adult briefs/bed pads, then think better of it. Just bathing him creates 1-1/2 loads (one wash cloth to wet an area, another to wash him, 2 to rinse him off, and one to dry the area). A bowel movement will get you another 1/2 load easily. You have his bedding, equipment padding/protection, and clothing to add in too. It adds up quickly. Three to five loads a day takes some time…
Seriously, he can’t be the first person in the history of Medicaid to be treated in this condition. Can he?