The sputum sample collected during the bronchoscopy on Thursday returned the presence of another bacteria, pseudomonas. Ryan’s is now in considered on contact precaution/isolation because of the potential seriousness of this bacteria.
Anyone who enters or stays in his room, including us, has to wear isolation garments. This required wear is beyond uncomfortable. It is hot, sticky, and generally annoying. Imagine yourself wrapped in a plastic kitchen garbage bag all day…
On a more positive note, the tube feed rate was upped from 25 to 30 ml per hour. This equals two tablespoons hourly. Ryan has tolerated this increase well, so we expect another increase in the rate today.
Sometime in the mid-afternoon we spoke with the doctor about the anticipated length of stay. It looks like Ryan will be in ICU until at least Saturday. He wants to keep him in ICU until the full course of antibiotics is complete. We are in agreement with the medical team that Ryan should be discharge directly home, with our promise to not expose him to any avoidable infections entering his environment (which, in this case, is our home) for another week to ten days after discharge.
Therapy accommodated me and brought up a CPM for Ryan. We used it on both legs last night [See photo above], two hours on each leg. Without any discomfort, Ryan was able to get his right leg to 120 degrees (maximum flexion).
For multiple reasons yesterday took its toll on me, both physically and emotionally. By the end of the day I had a headache that basically shut me down. It was a marathon day filled with multiple difficult decisions, unanticipated outside pressure, and exhausting hours.
Sue stayed strong while I stumbled.