Ryan was extubated early yesterday afternoon. It’s great to see that tube out of his month and no longer being attached to a ventilator.
Ryan has a condition called “stidor breathing” that’s being watched closely (click here to to listen to a quick audio sample). Essentially, this is a restricted airway. We’re told this is most likely caused by inflammation around his vocal cords; caused by the trauma of having a tube in his airway. The doctor believes it will resolve itself in a day or two. Ryan is getting steroid injections in his throat to speed the healing. If it continues, the plan is to scope him to see what is causing the obstruction.
After three days he was able to be fed again, albeit only 15 ml per hour. This is roughly equivalent to one tablespoon hourly . I expect his rate to increase by another 10 or 20 ml this morning. We worked hard to get Ryan’s weight up over the past three months for just such a case. He entered the hospital at roughly 175 lbs. One of the first things we’ll do when he eventually returns home is to reweigh him to see how much he lost.
By all indications, Ryan will be in ICU for at least another two days. We are pushing to have him discharged directly home from ICU, and not to the medical floor. We believe he will get better care at home while recovering and be free of all the infections commonly present in a hospital environment. Another infection right now would not be good.
The past week has been exhausting for my family. Ryan’s recovery is rejuvinating. We look forward to returning home.