Yesterday’s news of Ryan’s acceptance into the IBRF protocol is certainly the best we’ve heard in some time. While we appreciate and can surely claim some of the credit for making this possible, the simple truth is it would never have happened without the outpouring of support.
Archives for January 2011
IBRF Accepts Ryan!
Sue just hung up the phone with the International Brain Research Foundation (IBRF) moments ago. Ryan is accepted into their program! You can visit their website by clicking here. They are ready to move forward with Ryan’s treatment.
IBRF Request Ryan’s Most Up-to-Date Medication List
I am taking this as, perhaps, a positive sign. The IBRF called and requested we send them Ryan’s most recent medication list. We had it to them within minutes. My way of thinking is if Ryan was totally not being considered, they would have no interest in gathering more information.
No Word From IBRF. Medicaid Perplexes Me.
As of this posting we still have not heard from the team at the IBRF. I’m beside myself with anxiety. I promise, I will post as quickly as I can — good or bad — after I know. Now, onto my latest tirade. I’m a bit hesitant to bad mouth, especially after hearing from all […]
IBRF, Please Call.
As I said last week, we are anxiously awaiting a call from the International Brain Research Foundation (IBRF). What I didn’t tell everyone is the significance of it. There are two extremely important topics of this call, where one affects the other.