Since April of last year, Ryan exercises on a cycling machine that incorporates Functional Electrical Stimulation (FES) to activate his muscles. This machine was purchased through a special, targeted fundraiser and later contributions. His workouts involve his arms (up to one hour) and legs (up to three hours) three or four times a week. In […]
Archives for February 2013
It’s (essentially) official. Ryan’s Rally LLC will have a physical presence. I secured office space, insured the premise, and made my way through the maze of red tape. The annual lease begins on March 15th. The address is: 207 E. Holly Ave., #211, Sterling, VA 20164. They call it a suite, but it’s really the […]
On Tuesday I took Ryan to Children’s Hospital in Washington, D.C. for a “bone clinic” to measure his skeletal health. The results were not as I had hoped, which was to gain bone strength. Everything I do with him still isn’t enough. He continues to slowly lose bone density. The good news is that his […]
With Sue and I both sick last week we worried Ryan would catch it from us. I’m happy to say that this didn’t happen! Our precautions, with disinfecting, sanitizing, and everyone wearing breathing masks worked. It was awful to go through this process but at least we have confidence it works.
For those new to this website, like all our Oprah fans, I should tell you that last month I was invited to Duke University. They held a three-day conference called “Finding Consciousness” and asked that I take part on one of the panels; caretakers and advocates. This conference was packed with the pioneers in brain […]