I sat here in front of my computer, on-and-off, for hours. I don’t even know where — or how — to begin. How do I say “thank you” to all of you? I resigned myself to the realization that, no matter what I write, words will never express our appreciation for all you do. No […]
Archives for November 2011
Baclofen Reduction Successful, So Far
Later this morning Ryan will be twenty-four hours out from the decrease. He is now at a dosage of 199.7 micrograms (mcg) daily. To me, this is a huge psychological win by breaking the 200 mcg threshold. I wonder what it might feel like to be below 100 mcg?
It’s Like a Restoration Project
Here we go again. Another drug reduction is happening later this morning. Sure, I’m excited to see if anything positive comes of it, but I’ll be a nervous wreck for the next few days. By now I’m sure you all know the drill and I know I’m being redundant. It just helps to write about […]
General Updates
I’m a little pressed for time this morning, so I’ll use a list-format to provide an update on a wide range of things going on.
Blistering Frustration
What a relief. Ryan had a better night last night. In fact, he was so comfortable that his heart rate never climbed above sixty. I was happy to see him having a restful night after a few rough ones. I feel the source of his agitation is slowly resolving.