I decided to fight my intuition. How easy would it be for me to write a real tear-jerker today? You see, past Christmas Eves and Christmas mornings in our home were special. Almost magical. No, they were magical. They were days filled with excitement so intense, we had trouble sleeping and staying asleep. How many […]
Chick Magnet Entered in Writing Contest
“This brings us back to the “Chick Magnet”, the wheels that will propel Ryan and Ken into the days ahead. A method to keep treatment appointments and one day just to be out on the road, father and son sharing some time together, watching a once familiar world pass through the windshield. A world that […]
One Year Ago: Ryan Spends Holiday in ICU
Here is what happen exactly one year ago today, on December 21, 2010. My initial estimate of him being in the hospital for 5 – 7 days was, in hindsight, wishful thinking. He spent 3 weeks there. Ryan Returns to ICU: Respiratory Distress I’m sad to report that Ryan was rushed by paramedics to the emergency […]
IBRF Skype Call
I’m not really sure of what to make of the IBRF call yesterday. On one hand, they lead off with “not much has changed”. This is not good. On the other, they tell of measurements that show some progression. I’m doing my best to figure this out. It was very confusing.
IBRF Call Today
IBRF Skype Call It’s just over two weeks since the IBRF team visited Ryan to perform their evaluation. This afternoon, the results will be covered on a Skype conference call. The agenda will mirror the IBRF Visit Recap I published here on the website the day after.