Blue Moon Construction wrapped-up the kitchenette project on Friday. It’s more than we ever imagined! From start to finish, they just kept wanting to help. Always asking what else they could do for Ryan. Looking for ways to keep giving. John Ronay (owner, in center of photo on right) and his crew are amazing! I’m […]

EVENT:     Today from 11:00 am to Close-of-Business. WHERE:    Mediterranean Breeze & Sports Bar, 781 Station Street, Herndon, VA. WHAT:       Face Painting, Food, Home & Holiday Crafts, Jewelry, Raffle Items, Silent Auction,  50/50 Raffle. TONIGHT: KARAOKE beginning at 7:00 p.m.!!! We are really excited this event is being held for Ryan. Please, if you’re in the […]

My apologies for not posting yesterday. I tried several times, but so much was happening that it simply wouldn’t allow. It was crazy-busy — but in a good way — with one thing on top of the other. It was all-day pandemonium, starting at six in the morning and not settling down until eleven at […]

Baclofen Reduction Yesterday afternoon, around two o’clock, Ryan’s dosage was decreased from 199.7mcg to 175.0mcg. I’m not noticing any negative effects. At least not yet. His night was calm (but pulse was about 15 beats per minute higher than normal). Remember, I begin to breathe a little easier on this when we get past 72 […]

Rough Night. Ryan had one of his roughest nights in some time. He was uncomfortable and, again, I’m not sure why. His pulse was about twenty beats per minute higher than normal. He was squirming. He was coughing and raspy. His temperature went down — albeit not nearly as low as the previous night — […]