Every once in a while, I marvel at how many balls can be kept in the air at one time. Sue is feeling overwhelmed, and I can’t blame her. I see her stress. She fights migraines and tension headaches almost on a daily basis. Neither of us see any signs of relief. There is no […]
Archives for January 2011
Letter to Medical Director
I was hoping for feedback on the letter I intend to hand deliver to the Medical Director. Thanks Paula for putting this together!
Bad Nurse!
After all the stressful nonsense our family was put through the past couple of days, I thought the timing was ideal for my story of my one, and only, night with a bad nurse. Before I write about that particular night, I need to set this up. We have 2 regular nurses that carry the […]
Left Forearm Broken. E.R. Doctor Angers Me.
Yesterday afternoon while I was stretching/ranging Ryan I heard a loud snap as I was working on his left arm. Ryan’s pulse shot up immediately (I keep his vitals in real time when exercising). I knew it couldn’t be good. Did his ligament tear? Did his bone break? Did muscle fiber release? What just happened?
Real Food Tried Again
Before Ryan’s ICU stay over Christmas, we started introducing him to “real” food. We were only two days into it when he was taken to the emergency room.

