Yesterday a nurse came to our home to draw blood from Ryan. Despite her best effort she couldn’t find a vein. So, we decided to try again today with another nurse. Again, it was a good try but… nothing. Looks like we’ll need to regroup and find another way to have this performed. Perhaps we’ll […]
Blood Work and Eye Exam Today
If at First You Don’t Succeed We decided to run as much blood work as possible, that the antibiotic will not interfere. The nice thing is this can be done entirely at our home and keeps Ryan out of the hospital environment. There was an attempt by the nursing agency to get this yesterday, but […]
It’s a Marathon
I can’t begin to tell you how many times I’ve heard our situation described as “It’s a marathon, not a sprint”. True, it is a marathon. No doubt about that. It’s a marathon that really has no finish line. You just keep running and hope it’s not always uphill. You wish for a decline somewhere […]
Fallback Plan: In the Event of an Emergency
Be Prepared The popularity of this blog continues to amaze me. Thousands visit it each and every day. It will exceed half-a-million views before we flip our calendars to June. It is the best source to see how Ryan is doing, the trials our family faces, and keeping up on the legal aspect. The public […]
Nursing and Therapy Changes Coming
Saturday Recurring Vacancy Resolved? For months now we had ongoing difficulty having Saturday night shifts covered. Prior to each month the upcoming staffing schedule would arrive with Saturday’s blank. The nursing agency was always scrambling to find someone to work. Sometimes they were successful. Sometime they weren’t.