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"I tell him I tried. I tried to keep memory alive; I tried to fight those who would forget. Neutrality helps the oppressor, never the victim. Silence encourages the tormentor, never the tormented. There is so much injustice & suffering crying out for our attention. We must take sides. We must interfere. -E.W.

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A Text to Remember

November 4, 2011 by Ryan's Rally LLC 22 Comments

It was two years ago today, at 6:13 pm. This was the last time Ryan and I communicated. We were excited about all getting together for Thanksgiving. It use to be my favorite holiday because it was all about family (and food). Before our feast, we always gave thanks for our health and close family. […]

Filed Under: News

What if it’s Awful?

November 3, 2011 by Ryan's Rally LLC 17 Comments

I’ve watch the sunrise so many mornings, that it’s like listening to an old song. It reminds me I’m alive — good or bad — I’m alive and it really doesn’t matter what day it is. Every day is mostly the same as the last. I really don’t care if it’s Saturday or Monday. It’s […]

Filed Under: News

Sweet Dreams = Rough Days

November 2, 2011 by Ryan's Rally LLC 12 Comments

I both love and hate dreaming. For a brief time my sleeping mind makes everything alright. Yes, it’s all hunky-dory. I am on top of the world. I’m blissfully unaware of what awaits on the other side of sleep. As for waking, well, it’s not a slow descent back down the mountain. It’s being pushed […]

Filed Under: News

Update: Baclofen, YGR!, UTI, Rash, Store, Sleep Study

November 1, 2011 by Ryan's Rally LLC 16 Comments

Since there are several things I need to cover, I’ll put these into a list again. I hope you don’t mind that I do this once in a while.

Filed Under: News Tagged With: Baclofen, Fundraiser, IBRF

Today: Baclofen Reduction Again

October 31, 2011 by Ryan's Rally LLC 8 Comments

It’s less than two weeks since the last baclofen decrease (13 days, to be exact), but it’s going down another 10% again today at my request. Ryan is currently just under 285 (mcg) micrograms per days, so this will take him to 256… give or take a few mcg.

Filed Under: News Tagged With: Baclofen, Blood, ICU

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I Lost My Hero.

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