My intent today was to write only about tonight’s local (Northern Virginia) Fundraiser. And, I will. Before I do this, though, I have to share how the day began. It was quite a scare.
Surgery Updates
Tarsorrhaphy Ryan’s last eye surgery some three weeks ago, called a partial-tarsorrhaphy, is successful to this point. In everyday terms, a tarsorrhaphy is nothing more than sewing the eyelids shut. Anyhow, we will know even more today. The eye surgeon is seeing him later in the day to make some “adjustments”. Namely, snipping a few […]
Ryan Struggles with His Oxygen Saturation: Doing Better
It’s was a couple of rough days for Ryan. Hopefully, it has ended. From overnight Sunday until later in the afternoon yesterday I was struggling to keep his oxygen saturation up. Oxygen saturation, in layman terms, is really nothing more than a measurement of how much oxygen is reaching the body’s cells. Anything above 92% […]
Baclofen Pump Removal Scheduled
Last week Sue meet with a surgeon at Children’s Hospital (Washington, D.C.). It was a pre-operative meeting, where she gave Ryan’s medical history and then acquired clearance for surgery to have the internally implanted baclofen pump removed. All went as expected and Ryan is in line to have it removed.
The Strongest Emotion: Grief?
What is the strongest human emotion? Many feel it is love, and I respect this opinion. I just don’t believe it to be so. Others think hate or anger. Fear is certainly high on the list. How about greed or jealousy, which is really selfishness? From my experience, it none of these. It is grief… […]