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"I tell him I tried. I tried to keep memory alive; I tried to fight those who would forget. Neutrality helps the oppressor, never the victim. Silence encourages the tormentor, never the tormented. There is so much injustice & suffering crying out for our attention. We must take sides. We must interfere. -E.W.

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Hoping for a Better Day.

February 12, 2011 by Ryan's Rally LLC 20 Comments

Ryan’s day will begin shortly. I will get him up after his percussion therapy (we have a bed that does this) is complete. Percussion therapy is performed four times a day to mobilize secretions in his lungs. His night was peaceful, unlike the previous two. My best overall measurement of how he’s doing is his […]

Filed Under: News

Another Bad Morning.

February 11, 2011 by Ryan's Rally LLC 24 Comments

I’m sorry for not getting a post out on the information presented on the IBRF call yesterday. Truth is, I’m still trying to process it and put it into terms I can understand. I really hope to have this accomplished sometime today. It’s very technical! For the second day in a row, Ryan had a […]

Filed Under: News Tagged With: Temperature

Ryan’s Temperature Spikes. Returns to Normal.

February 10, 2011 by Ryan's Rally LLC 12 Comments

Out of nowhere, Ryan became extremely agitated. Well, not exactly “out of nowhere”, as he had a restless night. His temperature overnight moved around a lot, but never exceeded 101.0 degrees. He seemed to have calmed after he was dressed and up for the day. Then, about an hour or so later he suddenly began […]

Filed Under: News Tagged With: Temperature

Self-Diagnosis: Carpal Tunnel Syndrome.

February 10, 2011 by Ryan's Rally LLC 15 Comments

Okay. Never saw this one coming. Yet, it makes perfect sense. I am certain I developed carpal tunnel syndrome in my left wrist. I checked my symptoms online, and sure enough, I am the new poster child. Worse yet, one of the symptoms is loss of sleep! Seriously? 

Filed Under: News Tagged With: IBRF

Blood Work Drawn. 3T-MRI Still Unscheduled.

February 9, 2011 by Ryan's Rally LLC 12 Comments

A prerequisite to beginning the IBRF protocol is an extensive panel of blood work. I did a tally on the laboratory order and counted 18 different tests. Most of these were drawn yesterday morning, with a few pending. 

Filed Under: News Tagged With: IBRF

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