On Thanksgiving eve I switched Ryan’s g-tube to a “button-style”. It was about time to place a new one and I thought this style might be more accommodating to his passively active days. I searched back through my older blog posts and see in the February 19th post, G-Tube Comes Out, that this was the […]
My Thanksgiving… You.
I sat here in front of my computer, on-and-off, for hours. I don’t even know where — or how — to begin. How do I say “thank you” to all of you? I resigned myself to the realization that, no matter what I write, words will never express our appreciation for all you do. No […]
Baclofen Reduction Successful, So Far
Later this morning Ryan will be twenty-four hours out from the decrease. He is now at a dosage of 199.7 micrograms (mcg) daily. To me, this is a huge psychological win by breaking the 200 mcg threshold. I wonder what it might feel like to be below 100 mcg?
It’s Like a Restoration Project
Here we go again. Another drug reduction is happening later this morning. Sure, I’m excited to see if anything positive comes of it, but I’ll be a nervous wreck for the next few days. By now I’m sure you all know the drill and I know I’m being redundant. It just helps to write about […]
General Updates
I’m a little pressed for time this morning, so I’ll use a list-format to provide an update on a wide range of things going on.