[Update 11/29/2011: This post in no longer relevant. I removed the Amazon Store from the website this morning. In a nutshell, it wasn’t being used much and was too troublesome to continue.] You all know by know how much I dislike marketing this website. I do it, though, because it directly helps Ryan. Hey, I’m […]
Video: Ryan Samples Thanksgiving Dinner
Just like on all our big holiday meals, Kari likes to give Ryan tiny samples of many of the dishes. These are given on a sterile Q-tip type of cotton swab. The amount he samples is just enough to get the flavor and no larger. Putting more in his mouth would put him at risk […]
Video: Changing the G-Tube
On Thanksgiving eve I switched Ryan’s g-tube to a “button-style”. It was about time to place a new one and I thought this style might be more accommodating to his passively active days. I searched back through my older blog posts and see in the February 19th post, G-Tube Comes Out, that this was the […]
My Thanksgiving… You.
I sat here in front of my computer, on-and-off, for hours. I don’t even know where — or how — to begin. How do I say “thank you” to all of you? I resigned myself to the realization that, no matter what I write, words will never express our appreciation for all you do. No […]
Baclofen Reduction Successful, So Far
Later this morning Ryan will be twenty-four hours out from the decrease. He is now at a dosage of 199.7 micrograms (mcg) daily. To me, this is a huge psychological win by breaking the 200 mcg threshold. I wonder what it might feel like to be below 100 mcg?